Hi Everyone,

We get higher rate care for Harvey as he is such a handful but because he is physically fit lower rate mobility, but have any of these people tried managing a kid like him on a busy car park or roadway when he has an issue?! He can walk okay, and sprint / jump and in fact put himself in so much danger without any concept of the consequences and if he chooses not to hold hands or sees something he wants across the carpark / road he goes for it! As for the idea of using public transport....... I thought we had expressed all these concerns pretty well on the forms.

Is it worth going to appeal? Any suggestions are very welcome, or am I flogging a dead horse to get more mobility support because he doesn't fit the basic naive criteria they have set?

Thanks for any advice / tips.

Andy

(04-18-2010 04:17 PM)Happy Chappy Wrote:  Hi Everyone,

We get higher rate care for Harvey as he is such a handful but because he is physically fit lower rate mobility, but have any of these people tried managing a kid like him on a busy car park or roadway when he has an issue?! He can walk okay, and sprint / jump and in fact put himself in so much danger without any concept of the consequences and if he chooses not to hold hands or sees something he wants across the carpark / road he goes for it! As for the idea of using public transport....... I thought we had expressed all these concerns pretty well on the forms.

Is it worth going to appeal? Any suggestions are very welcome, or am I flogging a dead horse to get more mobility support because he doesn't fit the basic naive criteria they have set?

Thanks for any advice / tips.

Andy

Hi Happy Chappy!
We've just started the DLA process and have only recently submitted the form so am still waiting to hear the outcome. I TOTALLY understand what you mean about managing our children with autism in places like car parks etc. Jack has no sense of danger whatsoever and is happy to wander off alone - we have to watch him like a hawk. His mobility is strange in that he can walk fine and has been since he was 14 months old, but he can't stand from sitting or sit from standing! I have tried to get this over on the DLA form but now I think they just won't 'get it' when they read it and probably turn us down anyway. If Jack stumbles he just falls straight backwards and always bangs his head - it's heartbreaking for us when it happens. Unfortunately, like you say, the 'authorities' that have the say in granting allowances and benefits, generally don't have to look after children with any sort of disibility so often don't have a clue what it's like and I'm guessing will look at our completed forms with a point scoring system! Lots or luck with appealing (and I think you should). Go for it! x

yes appeal if u think hes in danger in car park ect and he has got no sense of danger think u entitle to more thn the lowest go to see some benefit ppl like citzen advice they will really help xxx

we have always got the high rate for mobility (got it for life but still have to apply every time) because of matt having severe autism, behavioural and all the rest that comes with it. when you phone up to have it looked at again tell them you are requesting that they look at your claim again because he gets the high rate care and he is classed as severely mentally impaired with severe behavioural problems this is from the direct.gov website

•because of a physical disability, you are unable or virtually unable to walk without severe discomfort, or at risk of endangering your life or causing deterioration in your health by making the effort to walk
•you have no feet or legs
•you are assessed to be both 100 per cent disabled because of loss of eyesight and not less than 80 per cent disabled because of deafness and you need someone with you when you are out of doors
•you are severely mentally impaired with severe behavioural problems and qualify for the highest rate of care component
•you need guidance or supervision most of the time from another person when walking out of doors in unfamiliar places

these are the reasons for claiming high rate mobility

this is on the national autistic society site as well that might be of some use
http://www.nas.org.uk/nas/jsp/polopoly.jsp?d=2235
corinne
(This post was last modified: 04-18-2010 05:46 PM by corinne.)

(04-18-2010 04:17 PM)Happy Chappy Wrote:  Hi Everyone,

We get higher rate care for Harvey as he is such a handful but because he is physically fit lower rate mobility, but have any of these people tried managing a kid like him on a busy car park or roadway when he has an issue?! He can walk okay, and sprint / jump and in fact put himself in so much danger without any concept of the consequences and if he chooses not to hold hands or sees something he wants across the carpark / road he goes for it! As for the idea of using public transport....... I thought we had expressed all these concerns pretty well on the forms.

Is it worth going to appeal? Any suggestions are very welcome, or am I flogging a dead horse to get more mobility support because he doesn't fit the basic naive criteria they have set?

Thanks for any advice / tips.

Andy

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hi i applied for d.l.a in oct 08!!!! for lauren ,she has aspergers,asd and epilepsy and i have been turned down for any d.l.a. at all twice!!!! so went to tribunal and was told still not enough info so now i am waiting on my second and final tribunal.....it terrifies me going to these and i am so annoyed that they obviously have no idea how much of our emotions they eat at ,when we are worn out emotionally and physically anyway. They just dont seem to understand that autistic children need constant care and attention all day long and at night. To be turned down for even low rate is ridiculous when i cant work because lauren is off school so much and i also am worn out.
I think you should appeal but it is emotionally draining. good luck
(This post was last modified: 04-18-2010 05:55 PM by lynnebowers.)