(01-23-2010 11:52 PM)kinderegg Wrote:  Hi not due back till end of year, not looking forward to it. Never had any money towards nursery etc Mum has always helped with childcare but she doesnt feel able to cope with a little one who has DS. Have asked about going part-time, work are being a bit shitty about it. Me and OH have always been classed as earning too much to qualify for any help, hes a teacher iam a psych nurse so not paupers but with 7 Children not rich either. We own our house but remortgaged to extend couple of years ago no where left to extend and no money to do it. 15 year old has a room which isnt really big enough to be classed as a bedroom, but cant go in with anyone else as he can get so aggressive couldnt trust him to not do someone some damage. Still he,s keeping a local plasterer in work , punches or kicks holes in walls and doors.....
Paula

Hi Paula,
Did you find out about tax credits and see if you were entitled to help with nursery fees?

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Our Irish members can also use our new website for Ireland which is

(01-24-2010 08:55 PM)Mummytotwogorgeouskids Wrote:  Hi i have a little girl who will be 3 next month and a gorgeous little boy who is 6 months and he has downs syndrome xx

Thanks for the introduction and welcome to the forum.
Feel free to get involved on the forum and if you need any help just let me know

Hi, I'm Beccy. I have a 4 and a half year old boy called Ewan and and a 2 year old daughter called Alexandria, Alex for short. Alex is profoundly deaf and has bilateral cochlear implants.

nice to meet you Bexmuz I am Karen and i have 2 boys diagnosed with a 9q34.3 deletion syndrome.

(01-30-2010 06:05 PM)Karen Wrote:  nice to meet you Bexmuz I am Karen and i have 2 boys diagnosed with a 9q34.3 deletion syndrome.

Hello Karen,

I am mum to a little girl who will be 6 in April. Just before Christmas we were told that our daughter has chromosome 1q21.1 microduplication syndrome and 1p33 microdeletion.

The hardest thing for us at the moment is finding out anything about these problems because they are so rare. Hopefully once our inheritence studies are compleye we will get genetic counselling and some answers to our questions.

Beverley x