Welcome to Parents of disabled children

Welcome to Parents of disabled children.

The online support forum is a friendly place offering support to parents of disabled children or parents of children with Special needs.
On parents of disabled children you can share advice or seek advice or maybe you just need a place to let off some steam then this is the place for you.

On parents of disabled children, Members can obtain Benefit advice and Education advice and ensure they are getting what they should be getting. 

We have members who have children with a variety of health conditions and special needs so you are no longer alone and you can find support with parents who are going through the same feelings as you.

Register now by clicking here and you can quickly become a member of parents of disabled children and get involved in the forum,Remeber it takes a special person to look after our special kids and our forum is full of special people looking after Special kids
 

Follow us on twitter Follow us on Facebook


1 user browsing this thread: (0 members, and 1 guest).

Post Reply 
 
Thread Rating:
  • 2 Votes - 3.5 Average
  • 1
  • 2
  • 3
  • 4
  • 5
Tell us about your childs diagnosis
02-07-2010, 04:51 PM
Post: #113
RE: Tell us about your childs diagnosis
is he at a mainstream school or special needs school? it sounds like they cant look after him if they have to keep calling you which defeats the object of him being in school as he wont be learning anything if he has no structure there. if the school has agreed that is the best place for him then its their responsibility to find ways to deal with his aggression not keep turning to you, thats what they get paid for. a friend of a friend who had a similar problem and as he had a 1:1 she had to say in the end she couldnt keep going to the school as she didnt drive and had other children as well, they still call but try to keep him at school if possible
corinne

There comes a point in your life when you realize:Who matters,Who never did,Who won't anymore...And who always will..
So, don't worry about people from your past,there's a reason why they didn't make it to your future.
Find all posts by this user
Share Quote this message in a reply
02-07-2010, 05:11 PM
Post: #114
RE: Tell us about your childs diagnosis
(02-07-2010 04:51 PM)corinne Wrote: You cannot see this link because you are not a member or are not logged in. Please register to forum by clicking here to see links and more useful information,we have introduced this feature to stop abuse of our system.is he at a mainstream school or special needs school? it sounds like they cant look after him if they have to keep calling you which defeats the object of him being in school as he wont be learning anything if he has no structure there. if the school has agreed that is the best place for him then its their responsibility to find ways to deal with his aggression not keep turning to you, thats what they get paid for. a friend of a friend who had a similar problem and as he had a 1:1 she had to say in the end she couldnt keep going to the school as she didnt drive and had other children as well, they still call but try to keep him at school if possible
corinne

He is in mainstream school as he is a very intelligent boy.
Honest to god you will not believe what school have put me through in the past, They called me while I was driving and coz I didn't answer the fone they gave me a deadline to call them back or they were foning social services to have him removed from the premises!
I even had to sit in class with him for a month or he would have to leave.
I was on the verge of a breakdown then everyone had the cheek to say I was the problem!!!!!!!!!
Everyone has tried but nothing has been done.
He's just been refused a statement but now he's had a 'diagnosis' as such I will be appealing.
Find all posts by this user
Share Quote this message in a reply
02-07-2010, 05:35 PM
Post: #115
RE: Tell us about your childs diagnosis
what makes them think social services would do anything?? they are there to support you not the school, as the problem was happening at school then they would be the ones in trouble not you.if you still have the message on your phone i would let your social worker hear it as this was threatening behaviour.
i would insist on a statement as it sounds like the school doesnt have a clue. if they cant cope they need to get a support worker to work alongside your son. you are allowed to have a job or a life outside of your children even if they are special needs, you are not at their beck and call. wonder what they did before mobile phones?
corinne Dodgy

There comes a point in your life when you realize:Who matters,Who never did,Who won't anymore...And who always will..
So, don't worry about people from your past,there's a reason why they didn't make it to your future.
Find all posts by this user
Share Quote this message in a reply
02-07-2010, 05:55 PM
Post: #116
RE: Tell us about your childs diagnosis
(02-07-2010 05:35 PM)corinne Wrote: You cannot see this link because you are not a member or are not logged in. Please register to forum by clicking here to see links and more useful information,we have introduced this feature to stop abuse of our system.what makes them think social services would do anything?? they are there to support you not the school, as the problem was happening at school then they would be the ones in trouble not you.if you still have the message on your phone i would let your social worker hear it as this was threatening behaviour.
i would insist on a statement as it sounds like the school doesnt have a clue. if they cant cope they need to get a support worker to work alongside your son. you are allowed to have a job or a life outside of your children even if they are special needs, you are not at their beck and call. wonder what they did before mobile phones?
corinne Dodgy



Never had a social worker and can't get one.
Corinne, I have no social life at all, I go out once a year to The Beer Fest and I don't even like beer or cider!! I hardly drink and don't smoke I just go to get out. The rest of the year I take the kids on holidays so life ain't so bad.
I am at my sons beck and call 24/7 even sat on the loo. There is no one else than can cope with him or calm him down.
My son did a runner from a bloke from Social Services, he would have legged it to my car and waited there for me but the bloke followed. I was asking him to stop and asked one of the other workers to call him and make him stop coz my son runs accross roads without looking but they said they need to make sure he was safe! My son legged it all the way to home and the bloke followed. Eventually my son lost him in a set of alleyways where we live...
Find all posts by this user
Share Quote this message in a reply
02-07-2010, 07:53 PM
Post: #117
RE: Tell us about your childs diagnosis
Hi Sue, I have had lots of hassle wsith school over my 15 year old, they were constantly calling me to go in and sort him out or take him away. had years of me asking them to help stop his being tormented /bullied nothing was ever done but as soon as he retaliated or threw a wobbly they were demanding I sort it. as corrine says the school should be finding ways to deal with his behaviour not harrsaaing you. how dare they threaten you, completely unacceptable. We ended up moving our boy into the school where his Dad teaches still having loads of problems but they have really tried, they got him assessed, diagnosed ASD, unfortunately the LEA keep refusing to assess him for support despite psych reports etc apparently his IQ puts him in the top 1 or 2%, but his aggressive /challenging behaviour makes life , erm to say the least interesting... hope they start listening and helping you soon
Paula

I DON'T NEED YOUR ATTITUDE!!! I HAVE ONE OF MY OWN!!!Fight
Find all posts by this user
Share Quote this message in a reply
02-08-2010, 08:22 AM
Post: #118
RE: Tell us about your childs diagnosis
Hi Sue,
The school have been wrong on every level.
When the school have made a threat i would not ask that you approach the education deparment and make the complaint official,it would be better if you still have the message in which the threat was made but if not it still sends a message to the school that you will not be bullied.
There are so many parents who feel exactly the same as you,I know me and Lucy feels frustrated by it all and i personally feel its all about money money money to the eucation department in every sense.
Have you been in touch with IPSEA at all?
If not i would suggest you contact You cannot see this link because you are not a member or are not logged in. Please register to forum by clicking here to see links and more useful information,we have introduced this feature to stop abuse of our system. and they can offer 100% independent advice on your rights in regards to education.
I much prefer IPSEA over Parent partnership on the basis that IPSEA is independent and parent partnership is a council funded and run department so i feel i cannot trust them Big Grin

You cannot see this link because you are not a member or are not logged in. Please register to forum by clicking here to see links and more useful information,we have introduced this feature to stop abuse of our system.
--------------------------------------------------------------------------------------------
You cannot see this link because you are not a member or are not logged in. Please register to forum by clicking here to see links and more useful information,we have introduced this feature to stop abuse of our system.
Find all posts by this user
Share Quote this message in a reply
02-08-2010, 11:57 PM
Post: #119
RE: Tell us about your childs diagnosis
I thought I would add mine on here too.

I am mum to my beautiful son Zack who will be one on Saturday (wooohooo). During his delivery I had a placental abruption which cause Zack to become starved of oxygen. This resulted in severe brain injury. So far Zack has feeding difficulties from birth he is PEG fed, he has West Syndrome, developmental delay, visual impairments, hearing difficulties but is a cool little dude. He has just stared smiling and laughing (laughs occasionally mainly at Daddy's horse impressions) and is really, really, really trying to lift his head up when on tummy time.

I am hopeful that Zack will continue to develop to the best of his abilities and will never ever give up trying for him. I love him more than I could ever have imagined.

x
Find all posts by this user
Share Quote this message in a reply
 Thanks given by Daniel
Post Reply