Hiya emma are you under john tolmie at yorkhill ?? as thats who i see.

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(01-18-2010 02:07 AM)mazmcc Wrote:

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Hi ive just found this web site I have 4 children the youngest of which is a lovely 13mth old boy who has downs syndrome. Its hard to tell how he is doing because whn he is good he is really good but when he gets sick mainly bad chest he gets extremely sick. He is also badly constipated. We thought he had epilpsey but docs now think his wee shakes are more related to his digestive system. He is on 2 movical a day which practally gives him diaroea but if his stools are any firmer he takes like wee shakes, has any1 else had problems like that? Through all he is a lovely boy he is now sitting up, messing with older siblings, crawling like an crocadile, beginning to clap hands and crys like a loonatic if i leave him (he wont even stay with his daddy!!). I find this hard cos he pick up coughs and colds very easily so i dont like taking him out much so that leaves us stuck in the house a lot which i wasnt used to!

Is the shakes more like jerks ?

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My husband and 2 boys also have a balanced translocation, so thats makes all my family have chromosome abnormalitys that makes me feel so much better

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Karen's signature

hi karen, Jorja is under Dr Gardiner at the ferguson smith clinic. we originally saw Dr Davidson. they have both been great & it was Dr Gardiner that gave Jorja her diagnosis in december.

great emma, we are under john tolmie at the ferguson smith centre in yorkhill. hes great.

Hi everyone Im new here too, Im 22 and have 2 1/2 year old son, who has Global Developmental Delay, whom is awaiting an appointment for some genetic testing, he has some behavioural issues, and has quite a few autistic tendencies. I find it all quite hard going I love him to pieces he has speech and language problems hardly has any words and he is a very anxious and very emotional child which the doctors think could be linked with genetics as he is also double jointed (hyperflexible joints). He is under community peadiatrician, pysiotherapy opthamoligist and now genetic consultant. Its great to meet people in the same situation

thanks for telling us about your child xvonniexxx,we have quite a few members with global development delay so take a look around the site and use the search option and you will see other members in the same boat as you.
When did issues become apparent to you?