Posts: 16 | Threads: 9
Joined: Feb 2010
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Hi There Ladies and Gents

Just wondering if anyone here has little ones with Neurofibromatosis (NF1).

I was diagnosed when we had our son and it has come out in a stronger from in him with the curvature of the leg.

We are based in Essex near Southend on Sea.

Love to hear from people


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