#1
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Just wondered whether other parents out there manage to get their child to wear a health condition bracelet?, or have at least thought about it? I've been looking for something which would be suitable for my daughter to wear on the rare occasion's in which she is out of my sight. Especially as we tried to attend a few hours at a playscheme this summer holidays. She has a very unusual genetic condition called Prada-Willi Syndrome, which has lots of weird and wonderful components which aren't immediate obvious, such as global development delay, speech problems, low motor tone, feeding problems and gets exhausted very suddenly. Also feeding problems are an important part as are being easily bruised, poor temperature control, not being able to vomit and a very high pain threshold etcetcetc..... After a number of emergency 999 calls due to breathing problems, and obviously I am always in arather upset state and it is always very difficult to clearly explain her medical problems I have written A4 sheets which I always carry with me, in order to hand to paramedics, nurses and doctors. It is so unusual they never know anything about it.. and I think it is easier, and so I think this bracelet idea is the next logical step..
I've found this Australian company which make these silicone braceelts and as this condition is so unusual they havn't already got some already specifically printed/imprinted etc. so I ordered a couple with a pattern on the outside and the odd medical symbol, in order to alert medical professionals and an area on the i/s in which to write specifics..

Really pleased with it,, just wondered if anyone else have found any 'nearer' companies ie in this counrty, especially about all the charity bands to tend to see people wearing these days.....

Sorry about the longlonglong message, think I needed a relaxing babble today.....
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#2
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My daughter has a Medicalert band. They are a UK based charity. They do a range of bands, bracelets and necklaces, they can put basic info onto the band and include a phone number for emergency so that doctors can get all the information. My daughter has complex medical and health needs in addition to Downs Syndrome. She has had her bracelet since she was 1. Medicalert do bands specially designed for children. I can't post links but if you put medicalert into google it will come up!

The bands / bracelets / necklaces cost about £20 to £25 and membership of the scheme is £25 annually. You only need to replace the band if the information changes significantly.

I definitely recommend them, if you decide to join their scheme you speak to a nurse who will discuss all the medical information and identify the best information to put on the band. They have always been extremely helpful. Knowingthat my daughter is wearing a band - particularly if I'm not with her - reassures me that should anything happen her medical information can be accessed easily and immediately.
#3
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That great, thanks. I'll have a look now. Thought someone else out there must be like me !
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#4
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I think they are a brilliant idea, going to telephone tomorrow to join.
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#5
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There is a company that do the rubber ones in the UK, although I'm not sure of the conditions they have - my daughter has one with asthma, and my niece and nephew have them with type one diabetes and allergy to wasp stings. I'll try and find the link for it asap.
My son has such small wrists though that they just fall off. I've just bought some ID tags on ebay, where you can have pictures put on. On one tag I had a picture of Buzz Lightyear (so it looks fun and childlike) but I edited the picture to have the medic alert symbol on, and the second tag has his name, DOB, and medical conditions. Cost me about £6 for the lot. We also have some adjustable wristbands with a velcro strap. If you type medical alert jewellery into google it'll come up with a few.
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