Posts: 53 | Threads: 2
Joined: Feb 2011
Reputation: 0

  • Member
I got my daughters DLA claim back yesterday and although shes had higher rate care for the last nearly 3 years they've reduced it back to middle! She has always got higher rate mobility.

I had a feeling they would as when she got it last time her epilepsy was really bad and she was having seizures in the night and wetting the bed.... she has always been a bad sleeper anyway but before this had always got only middle rate ( people involved with her have always said she should be on higher but I just put down to her age and how much that would be different to typical children her age.

But shes now 11, will be 12 when new award would start and she still sleeps terribly, and has to be re-positioned or go to the toilet most nights ( which she cant do alone) and I just think its unfair that I never have a full nights sleep and if she wakes I need to stay with her as she will start trying to maneuveor herself and has a few times then fallen and injured herself. Plus shes generally awake from about 5.30 every day as well!!!

My husband thinks I should appeal as we know a few children who need so much less care than her who are on higher rate care, what does everyone think? Theres no mention of her bad sleeping on the letter.

Any advice would be appreciated Smile
Proud mum of 3...... Dani,13, amazing child....Sofie,11, my smiler, physically disabled, 3 strokes aged 2, speech issues, learning difficulties, epilepsy.... and Luke,2, diagnosed with autism January 2011, non-verbal cheeky chappy.

Users browsing this thread: 1 Guest(s)