#6
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[quote='Lucy' pid='31138' dateline='1310836778']
i think alot of people do struggle to get the higher rate mobility element with autism, i believe the main barrier is trying to convince who ever is dealing with your claim that your child is not choosing not to walk or run off etc and that because of their disability they are not capable of making that choiceas, they are not consciously able to choose (if that makes sense). The key is in putting as much detail as possible into the form and also getting solid reports from her doctors and other professionals to back you up. I would apply, see what your awarded and then if your not happy and believe you should get more you can appeal or ask them to look again Smile

xx
Thank you for your response Lucy . Our daughter needs supervision all day and night. She suffers from hurrendous night terrors and lashes out in her sleep, she also sleep walks. She does not understand danger, basically she does not understand most things. Her specialists said her brain is running 3 years behind her 5 1/2 years of age, so basically 2 1/2 years. We have now applied and have to wait for the outcome. Also was told by local council that we cannot get a blue badge for parking?! because she is able to walk, but i will be applying for this anyway, as mentally, she is unable to comprehend danger etc. I will keep you posted on the outcome,

Thanks again, Carrie xx
#7
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Ben is 5 and has ASD and also mild problems with walking, we had to fight to get moblity and could only get the low rate. If you get high rate moblity you can get a blue badge and a car. We have applied for a blue badge but don't thin that we will have any luck
#8
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Thank you, i think i'm just going to apply for everything and they will inform us if she is entitled to it or not surely Smile thanks for all of your responses though, we have another appointment tomorrow with the specialist, so will let you all know how we get on there Smile xxx
#9
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We've been for 2 more appointments since i last posted. Her diagnosis has been added to, as we thought it would be, she has now been diagnosed with ASD, GDD, ADHD, SD, Incontinence problems, Sleep disorder, Significant language and comprehension Delay :o( quite a bit more than what we were expecting, but i suppose at least now, she will receive all the help she needs. Still waiting for the DLA, that's 9 1/2 weeks now and counting lol, just worried, as i only put the ASD and ADHD on her application, will this matter? as they have written for reports from her specialists?! The specialist sent her report back to them on monday 22nd August, so fingers crossed we will hear something very soon. Received a letter today, stating that i am the person dealing with her money matters for her DLA claim (bit confused as not received anything yet)?! is this normal? thanks again xx
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(07-18-2011, 07:23 AM)wweangelica Wrote: Ben is 5 and has ASD and also mild problems with walking, we had to fight to get moblity and could only get the low rate. If you get high rate moblity you can get a blue badge and a car. We have applied for a blue badge but don't thin that we will have any luck

Hi - Jack is autistic and has global hypotonia so has walking and balance problems. We're still waiting to hear about DLA Mobility (been 9 weeks since we applied!!) but the reason I'm replying to your post is that my friend also applied for DLA mobility for her daughter (who they are still waiting for official diagnosis for but believe she is autistic) she was refused it and is appealing BUT she managed to get a blue badge by using a letter from her GP detailing the problems she has controlling her daughter when out and about and her daughter's lack of understanding and verbal communication. I'm really pleased she got a good result cause it's taking ages for her to get an official diagnosis. May be worth a try for you too. x


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