#1
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Hi all, new to all this! First Thread! My 5 year old son has kanners autism, severe learning difficulties, & adhd. He is non verbal, & still in nappies. I cant see him being toilet trained any time soon. problem is that we've only one bathroom which is upstairs. we really need a downstairs bathroom for him. Woundering if anyone similar was able to get grant approval from OT for this work. My social worker asked OT and she said only children with physical disabilities would get it. I dont think this right because for dla purposes severe autism is classified as a physical disability.
#2
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Have you contacted your Local Authority about a disabled facilities grant?

I know our LA are really quick (compared to other timescales in place). A friend was sick of waiting for the OT to get her act into gear for adaptations so contacted our LA for her 7 year old daughter in May, they came round assessed the situation; by June the LA had sent 3 workmen in to get quotes from and they have just started work on a downstairs wetroom.

all your LA can say is No .... If you don't ask you don't get

Good luck
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#3
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we had a downstairs toilet put in by the council. we did have an outdoor one and when better homes came around they stated all outdoor loo's had to be made indoors but when we saw the paperwork they were getting it paid by disability resources because there is a disabled person in the house. while autism isnt classed as a physical disability they are still discriminating by saying that it isnt a disability. i would tell you social worker that you want the ot to come around and do an assessment as "even" autistic children are entitled to one. our social worker has just put in a referral to the council for a driveway, he doesnt hold out much hope but he has still done it anyway
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#4
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Thanks for reply. couple years ago when my son was under community his ot did an assessment and along with safe outdoor play area she put in for downstairs toilet but back then we were approved for outdoor area but not the toilet because of his age as he would have been about . Now he is in school and is seen by OT there. When my social worker contacted her about it 6 months ago I think she said no as its not a physical disability. I was fed up couple weeks ago and though sod it if you dont ask you dont get so rang her. Actually it was after his Psychologist was at our house I mentioned it and he said surly under 'challenging behaviour' he would get. Anyway she is off on leave but when I ran it past the OT in her office she said that it could be looked at cause what the criteria is that the child should be physically capable of walking up the stairs. I then asked is this to be unaided? as he would be able to take the verbal instruction to walk up stairs he has to be lead to do everything you need him to do. Its getting to be a nightmare because when he soils his nappy he immediately pulls it off and uses hands to clean himself. So we then have to drag him out and up stairs to clean up the mess. I got the impression that he would get it but that its up to his OT to do the assessment & I’m not completely sure of she will be as accommodating but we’ll definitely fight for it & believe that we have a really good case as he gets specialist intervention in school and at home because he is severe and extreme challenging behaviour. Fingers crossed but think it will long process!!! The usual when it comes to our Children as nothing is made easy for you!!!


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