#6
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Corinne - I am the queen of supermarket gf/cf shopping!! I have visited every flipping supermarket in our area. Tesco have a brilliant range of 'free from' stuff and I was only in there yesterday getting pasta, 'Bob' sauce and pizza bases. They also do a nice fruit cake!! x
#7
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(06-05-2011, 08:27 PM)SusieL66 Wrote: That's interesting. We've been following the gf/cf diet for Jack for a fortnight now and have seen great improvements in his personality and we know that it has improved his digestion. We took it on board ourselves and haven't yet consulted with our GP or Paed as we have in the past been told that there was no scientific evidence to prove that it really works! I can't wait for them to see Jack again.
It is expensive though and I try to cook and bake everything from scratch but just to get snacks in, the milk, bread etc is busting our budget. I'm cutting back on family treats so we can do this so any help would be great - even if it was just for bread and milk! x

Hi, we they our best to follow the Specific Carbs diet but on occasions when in hospital or holidays we do buy the gluten free bread .e.t.c. She is allergic to Rice products with us too which is in a lot of the GF! But I think any of these specialised diets are very expensive but if we see the benefits i don't mind paying extra although it would be nice to have a little help. We are seeing the GP next week and her gastro consultant is going to send a letter to the GP about the improvement with her Crohn's while on this diet. I am just hoping this will help sway the decision for us!!!!!
Things can be hard on occasions but well worth it!Heart
#8
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(06-05-2011, 04:09 PM)Ilovecake Wrote: Hi, we follow the gluten and casin free diet with our little one for a long time now and find it really helps keep her Crohn's Disease under control! We have also seen an improvement in her autism and we have less meltdowns. Does anyone know if we can get these foods on prescription? I have already spoken to the gastro and he said it was best to ask the GP as nothing is proven that gluten free improves Crohn's! As her Mum I would never consider giving her a norm diet as she would just have severe stomach pain and be in the toilet every half an hour!!:-(
Thank you in advance for any replies. X
it might be worth a try


(06-05-2011, 04:09 PM)Ilovecake Wrote: Hi, we follow the gluten and casin free diet with our little one for a long time now and find it really helps keep her Crohn's Disease under control! We have also seen an improvement in her autism and we have less meltdowns. Does anyone know if we can get these foods on prescription? I have already spoken to the gastro and he said it was best to ask the GP as nothing is proven that gluten free improves Crohn's! As her Mum I would never consider giving her a norm diet as she would just have severe stomach pain and be in the toilet every half an hour!!:-(
Thank you in advance for any replies. X
it might be worth a try

#9
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I had a chat with the GP today and he was unable to give gluten free vouchers as she hasn't got coeliac disease!!! But did tell us to talk with the Gastro doc as he might be able to help but already spoken to him and he said that it's up to the GP??? We are seeing the pead next month so I shall try again to see!!
Things can be hard on occasions but well worth it!Heart
#10
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I've had a dig around and it is hard to find info on this but it seems that unless an adult or child specifically has a clinically diagnosed gluten-sensitive enteropathy such as coeliac disease or dermatitis herpetiformis then they are not entitled to gluten free foods on prescription. This qualifying criteria appears to be a general NHS thing rather than something which might vary in different areas, the only difference in areas appears to be what products you can get if you are entitled. Still worth asking but doesn't sound too hopeful.


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