#1
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Hi if you were thinking of joining a local support group what would be most important to you ?
I am thinking of setting up a small group in my local area of poole in dorset and would like lots of ideas what people would like to see
thanks x
#2
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Hiya
Sounds good but to come up with ideas a bit more info would be useful. Is it a group just for parents or for parents and children, if so what age children? and is it a 'open to all' group or is it for parents of children with disabilities, if so is it for all disabilities or are you setting up a support group for parents of children with a particular condition?
Thanks
#3
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(05-31-2011, 07:26 AM)getthekettleon Wrote: Hiya
Sounds good but to come up with ideas a bit more info would be useful. Is it a group just for parents or for parents and children, if so what age children? and is it a 'open to all' group or is it for parents of children with disabilities, if so is it for all disabilities or are you setting up a support group for parents of children with a particular condition?
Thanks

Hi yes sorry i didnt give much info did i well i was planning on the group aiming at children without a dignoises or rare disorders because there isnt anything in my area for these familys
what id like to offer is coffee meeting for parents children would b welcome to and also to run at least one family meet up a month
to would provide lots of support and friendships to people in simlar postions
Id also like to have a varitey of leaflets on different conditions and grants available
what do u think ? xxx
#4
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Hi again,

I think it sounds great & I’m sure people would find it helpful if they are in that situation but it can be a lot of work setting this sort of thing up so I hope you have some friends or like-minded parents/carers to help.
Personally, in a group I think the most important thing is for it to be friendly and welcoming and if you can provide accurate, useful info about conditions, grants, etc then that would be great. If you are open to suggestions from group members that can also be useful. Sometimes it can be good to invite someone in to talk about relevant issues as well.
When setting up a group there is a lot to think about. About 10 years back I set up and ran a toddler group & the biggest issue for parents was that it could be hard to join groups as it can seem like everyone else knows each other & people don’t talk to newbies. We took subs at a table just inside the door so that everyone was welcomed when they arrived and we always took a new person over and introduced them to others. The same issue came up when I worked in family support, part of my job was to escort people to the groups until they were happy about going. Walking in alone was a huge issue for many parents. Once you’re up and running then maybe some people could volunteer to be a point of contact and meet up with new people on the way so they can find it and so they don’t have to walk in alone.
When you advertise make sure there’s a phone number and email address so people can contact you before coming if they want to. Also think about how you will advertise and where.
Have you got premises in mind? I ran our toddler group in the local church hall. The church had previously run the group but it had closed due to lack of volunteers so they were happy for us to use their old toys – after a good clean!
If you are a specialist group will you need any special equipment for changing nappies, etc and will you need any specialist toys?
What age of children? Activities for children – who sets up and runs them? If you want a rota for tea duty, setting out, clearing up, etc, then make it clear at the start.
If you need to charge subs to cover rental of premises and maybe save a bit for outings etc then you may need a bank account and normal practice was to have more than one signatory.
Leaflets sound a good idea and a lot of charities and the NHS could maybe help with this. Smaller numbers of individual leaflets can often be obtained free.
Is it going to cost much to set up and have you thought of applying for funding from places such as the New Opportunities Fund, Children in Need, etc.
This is just practical stuff off the top of my head but I hope it's useful for you.
Good luck with it

Jayne x

#5
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Hi we have started up a support area in our area and its for parents of a child with any problem of any age . Its in a local sure start so have only few places for children if their parents come . It is slow to take off even though we have handed out leaflets and posters . My son still has no diagnose so its been great for me . I've spoke about doing a monthly met at the weekend so families can come and give out info and just to friend other parents going through the same thing xx
Single mum to a 14year old daughter and a son who is 3years old who has severe learning disability , hypotonia , hypermobility , visual impaired and sensory issues , he has showed me the meaning of life Heart and 3rd baby due 2nd of January 2012


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