#11
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have you tried contact a family there normally quite good, you tell them the symtoms of the child and they can match you up with a family who have a child with simular or the same symptoms normally in your area.
id give it ago you have nothing to lose but you may find your diagnoises
hope this helps
#12
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Thanks for all your advice guys..yea daniel that would be great as i have noooo idea what im doing! is that what i'd need to get his notes?x
#13
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His notes will tell you things the doctors never have. I know this seems strange but its how it works and its legal. When I got my sons notes I was horrified at the difference between what they knew and what they told us, but aparently as long as they tell the bare minimum then they are covered. This is quite normal.
Personally getting our sons and my notes (from a complicated birth) was very helpful to me to understanding what the doctors are thinking and why they do what they do. It gave me alot of peace.


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