#6
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I was going to suggest the local MP, social workers, doctor and consultant letters... not only is this situation having an effect on your daughter but also on your own mental health .... where i live housing is fantastic, i know we all have to fight for what we want/need but up to now i have had fantastic support from all professionals involved... Look around the area you want to be and if you see an empty house then go straight to the council or get your local MP or any of the above to ring them ...
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Hi jan,
thanks for your reply. My local MP has written a letter to the council and i am waiting for a reply from them at the moment.Also my daughters care co-ordinator, physiotherapist and peaditrican have wriiten a letter but no luck as yet. Its very diificult where i am. I actually drove round a few time and seen a property that was emptied but the council said i was only down on their systen for a 2 bed. They said as 1 report says my daughter has 'mild development delay' that she should be able to sleep in the same room as my son. The thing is she is having numerous teasts and mri scans and genetics involved to determine if she has an abnormal chromosome. She does not speak or walk so she gets easily frustrated. Its hard as i have been bidding for properties for over a year now. I am trying to be changed from a 2 bed to a 3 so my daughter has her own room. I am not stopping. I have advocacy(think its spelt write) which gets the help if i want someone to assess or help with my situation. Just got the form today so if this fails i will ring a social worker to help on the situation. How did you get the help you needed? Hope to hear from you soon.
tanya
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im guessing your children are young but i would be going down the route of if you have to move now then there is no way you want to be moving again... the stress is more than enough looking after a child with needs without adding to it wondering at what point you have to move again. Tell them you want to be settled with your children and focus 100% on your childs need .... Jeezzzzz it relly makes me angry sometimes Angry
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(04-09-2011, 12:11 AM)tanya Wrote: Hi everyone,
Im new to this site and would much appreciate your advice on my situation and what you think i should do. I am a full time carer on my own for my daughter who will be 3yrs old in july.She has Global delay development and is undergoing various tests since nov 2009.She does not walk or speak( limited to 3 words). Currently she shares a bedroom with myself and my 16 month old son as our boxroom is used for spare things( bikes, landmower etc). We live in temporary accomodation in a 2 bed ground floor flat.Problem is the following
1. As my car is at the back of the flats, i have to leave my daughter in the flat while i put my son in the car. Leaving her for a couple of minutes makes her distress as she gets upset very easily. Also the fact that i leave my son in the car on his own while i get my daughter is not good. This on a daily basis is hard as i have to calm my daughter down for most of the journey. Also carrying her back and from the car affects my back as its beginning to put a lot of weight on me and am now getting back ache.
2.My only support is my mother who lives in another area. This is where i want to be. It is in the same town just 20 min away. I need the support as i feel isolated from my friends and family and would love more help especially as if im not well (have bad asthma) atleast i will have help.
3.As my daughter wakes through the night, this disturbs my son who then cannot have proper sleep.I am then awake trying to put him asleep so i can concentrate on getting my daughter to sleep too. She has had a sleep monitor done as she has irregular breathing through the night. test result on monday.being awake and not having proper sleep affects us all the next day. i feel this interfers with my day to day role of looking after my daughter as i feel drained sometimes even though everyone says im always cheery. Having her own room would benefit both my daughter and my son as he woul get proper night sleep and i could concentrate on her knowing once shes asleep i can too without my son waking up because of the noise.
4. we do not have a garden. This would benefit my daughter greatly as she loves going to the park on the swings especially.Having a garden for gym equipment would not only make her extremely happy but this would be good to strengthen her muscles by using slides etc and taking her to the park constantly (i do regularly) when sometimes its too hard, i can just open the doors and let her play in the garden which she would love.
I am on the bidding site for a suitable property. So far i have given in her latest medical reports and a note from her specialist saying we need more space. Also my daughters care co-ordinator has written 2 letters. so far, the council have said im still down for a 2 bed property. I am so annoyed. I have written to the MP and have contacted shelterline. They said to find out where i am on the list. I am band 2, needs 2 which apparantely is high priority but i have been bidding for 14 months with no joy. Also they said its bes to check councils allocation policy. I rang my my local care place which deals with problems they may help with. They said to speak to my GP and that a lady with 2 girls who 1 has special needs went to the council everyday and in the end they gave her a 3 bed house near her mums for support. I dont know what to do anymore. I seem to be trying. Anyone with similar problem or been through similar thing. Any advice please. much needed. tanya. thanks
lots of hugs to you, we was given a 3 bed house as the council said that both my boys needed their own space. I would keep on to the council.
also have you tried teh homeswapper website
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Sorry ment mild means council says she does not need own room

































Sorry ment mild means council says she does not need own room


































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