#1
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Hi everyone,
Im new to this site and would much appreciate your advice on my situation and what you think i should do. I am a full time carer on my own for my daughter who will be 3yrs old in july.She has Global delay development and is undergoing various tests since nov 2009.She does not walk or speak( limited to 3 words). Currently she shares a bedroom with myself and my 16 month old son as our boxroom is used for spare things( bikes, landmower etc). We live in temporary accomodation in a 2 bed ground floor flat.Problem is the following
1. As my car is at the back of the flats, i have to leave my daughter in the flat while i put my son in the car. Leaving her for a couple of minutes makes her distress as she gets upset very easily. Also the fact that i leave my son in the car on his own while i get my daughter is not good. This on a daily basis is hard as i have to calm my daughter down for most of the journey. Also carrying her back and from the car affects my back as its beginning to put a lot of weight on me and am now getting back ache.
2.My only support is my mother who lives in another area. This is where i want to be. It is in the same town just 20 min away. I need the support as i feel isolated from my friends and family and would love more help especially as if im not well (have bad asthma) atleast i will have help.
3.As my daughter wakes through the night, this disturbs my son who then cannot have proper sleep.I am then awake trying to put him asleep so i can concentrate on getting my daughter to sleep too. She has had a sleep monitor done as she has irregular breathing through the night. test result on monday.being awake and not having proper sleep affects us all the next day. i feel this interfers with my day to day role of looking after my daughter as i feel drained sometimes even though everyone says im always cheery. Having her own room would benefit both my daughter and my son as he woul get proper night sleep and i could concentrate on her knowing once shes asleep i can too without my son waking up because of the noise.
4. we do not have a garden. This would benefit my daughter greatly as she loves going to the park on the swings especially.Having a garden for gym equipment would not only make her extremely happy but this would be good to strengthen her muscles by using slides etc and taking her to the park constantly (i do regularly) when sometimes its too hard, i can just open the doors and let her play in the garden which she would love.
I am on the bidding site for a suitable property. So far i have given in her latest medical reports and a note from her specialist saying we need more space. Also my daughters care co-ordinator has written 2 letters. so far, the council have said im still down for a 2 bed property. I am so annoyed. I have written to the MP and have contacted shelterline. They said to find out where i am on the list. I am band 2, needs 2 which apparantely is high priority but i have been bidding for 14 months with no joy. Also they said its bes to check councils allocation policy. I rang my my local care place which deals with problems they may help with. They said to speak to my GP and that a lady with 2 girls who 1 has special needs went to the council everyday and in the end they gave her a 3 bed house near her mums for support. I dont know what to do anymore. I seem to be trying. Anyone with similar problem or been through similar thing. Any advice please. much needed. tanya. thanks
#2
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Hi im kind of going through the same thing my youngest has a global development delay and was diagnosed with autism a few months ago he has had sleep problems since birth.He currently sleeps in my room and wakes at least 3 times a night everynight and after some advice from members on this site i filled in a medical needs assessment form and they reassesed my band but didnt change the amount of bedrooms i am allowedAngry.But i have been seeing OT & CP and they have come to the conclusion that they need to just make sure my son has his own space as this is his sleep pattern and they cant change it37 and he needs a safe place to sleep because he is still in his cot which is not safe but its the only thing that keeps him from wandering & hurting himself .Also after waiting for Social services referral for OT i got so fed up i wrote a letter to them and they came the next week.They decided to put my case in front of the welfare panel and have suggested i get a 3 bedroom so im waiting to find out what they have decidedHuh but i would say the more support you have the better because the council are useless. I hope you get the space you need i know what its like to be shattered and just because you get up everyday and put on a brave face doesnt mean your ok. Its not healthy to live how you do, i find myself saying to people remember how tired you were when you had your newborn baby and they woke you up 3-4 a night every night for 4 months, now imagine doing that for 3 years.Good luck and keep fighting for it i will let you know what happens to my case and anything that can help yours but i would definately get a social worker if you can.
Mum of 2 lovely boys[Image: smiley-angelic008.gif]



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#3
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(04-09-2011, 12:11 AM)tanya Wrote: Hi everyone,
Im new to this site and would much appreciate your advice on my situation and what you think i should do. I am a full time carer on my own for my daughter who will be 3yrs old in july.She has Global delay development and is undergoing various tests since nov 2009.She does not walk or speak( limited to 3 words). Currently she shares a bedroom with myself and my 16 month old son as our boxroom is used for spare things( bikes, landmower etc). We live in temporary accomodation in a 2 bed ground floor flat.Problem is the following
1. As my car is at the back of the flats, i have to leave my daughter in the flat while i put my son in the car. Leaving her for a couple of minutes makes her distress as she gets upset very easily. Also the fact that i leave my son in the car on his own while i get my daughter is not good. This on a daily basis is hard as i have to calm my daughter down for most of the journey. Also carrying her back and from the car affects my back as its beginning to put a lot of weight on me and am now getting back ache.
2.My only support is my mother who lives in another area. This is where i want to be. It is in the same town just 20 min away. I need the support as i feel isolated from my friends and family and would love more help especially as if im not well (have bad asthma) atleast i will have help.
3.As my daughter wakes through the night, this disturbs my son who then cannot have proper sleep.I am then awake trying to put him asleep so i can concentrate on getting my daughter to sleep too. She has had a sleep monitor done as she has irregular breathing through the night. test result on monday.being awake and not having proper sleep affects us all the next day. i feel this interfers with my day to day role of looking after my daughter as i feel drained sometimes even though everyone says im always cheery. Having her own room would benefit both my daughter and my son as he woul get proper night sleep and i could concentrate on her knowing once shes asleep i can too without my son waking up because of the noise.
4. we do not have a garden. This would benefit my daughter greatly as she loves going to the park on the swings especially.Having a garden for gym equipment would not only make her extremely happy but this would be good to strengthen her muscles by using slides etc and taking her to the park constantly (i do regularly) when sometimes its too hard, i can just open the doors and let her play in the garden which she would love.
I am on the bidding site for a suitable property. So far i have given in her latest medical reports and a note from her specialist saying we need more space. Also my daughters care co-ordinator has written 2 letters. so far, the council have said im still down for a 2 bed property. I am so annoyed. I have written to the MP and have contacted shelterline. They said to find out where i am on the list. I am band 2, needs 2 which apparantely is high priority but i have been bidding for 14 months with no joy. Also they said its bes to check councils allocation policy. I rang my my local care place which deals with problems they may help with. They said to speak to my GP and that a lady with 2 girls who 1 has special needs went to the council everyday and in the end they gave her a 3 bed house near her mums for support. I dont know what to do anymore. I seem to be trying. Anyone with similar problem or been through similar thing. Any advice please. much needed. tanya. thanks
#4
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(04-09-2011, 12:11 AM)tanya Wrote: Hi everyone,
Im new to this site and would much appreciate your advice on my situation and what you think i should do. I am a full time carer on my own for my daughter who will be 3yrs old in july.She has Global delay development and is undergoing various tests since nov 2009.She does not walk or speak( limited to 3 words). Currently she shares a bedroom with myself and my 16 month old son as our boxroom is used for spare things( bikes, landmower etc). We live in temporary accomodation in a 2 bed ground floor flat.Problem is the following
1. As my car is at the back of the flats, i have to leave my daughter in the flat while i put my son in the car. Leaving her for a couple of minutes makes her distress as she gets upset very easily. Also the fact that i leave my son in the car on his own while i get my daughter is not good. This on a daily basis is hard as i have to calm my daughter down for most of the journey. Also carrying her back and from the car affects my back as its beginning to put a lot of weight on me and am now getting back ache.
2.My only support is my mother who lives in another area. This is where i want to be. It is in the same town just 20 min away. I need the support as i feel isolated from my friends and family and would love more help especially as if im not well (have bad asthma) atleast i will have help.
3.As my daughter wakes through the night, this disturbs my son who then cannot have proper sleep.I am then awake trying to put him asleep so i can concentrate on getting my daughter to sleep too. She has had a sleep monitor done as she has irregular breathing through the night. test result on monday.being awake and not having proper sleep affects us all the next day. i feel this interfers with my day to day role of looking after my daughter as i feel drained sometimes even though everyone says im always cheery. Having her own room would benefit both my daughter and my son as he woul get proper night sleep and i could concentrate on her knowing once shes asleep i can too without my son waking up because of the noise.
4. we do not have a garden. This would benefit my daughter greatly as she loves going to the park on the swings especially.Having a garden for gym equipment would not only make her extremely happy but this would be good to strengthen her muscles by using slides etc and taking her to the park constantly (i do regularly) when sometimes its too hard, i can just open the doors and let her play in the garden which she would love.
I am on the bidding site for a suitable property. So far i have given in her latest medical reports and a note from her specialist saying we need more space. Also my daughters care co-ordinator has written 2 letters. so far, the council have said im still down for a 2 bed property. I am so annoyed. I have written to the MP and have contacted shelterline. They said to find out where i am on the list. I am band 2, needs 2 which apparantely is high priority but i have been bidding for 14 months with no joy. Also they said its bes to check councils allocation policy. I rang my my local care place which deals with problems they may help with. They said to speak to my GP and that a lady with 2 girls who 1 has special needs went to the council everyday and in the end they gave her a 3 bed house near her mums for support. I dont know what to do anymore. I seem to be trying. Anyone with similar problem or been through similar thing. Any advice please. much needed. tanya. thanks

(04-09-2011, 12:11 AM)tanya Wrote: Hi everyone,
Im new to this site and would much appreciate your advice on my situation and what you think i should do. I am a full time carer on my own for my daughter who will be 3yrs old in july.She has Global delay development and is undergoing various tests since nov 2009.She does not walk or speak( limited to 3 words). Currently she shares a bedroom with myself and my 16 month old son as our boxroom is used for spare things( bikes, landmower etc). We live in temporary accomodation in a 2 bed ground floor flat.Problem is the following
1. As my car is at the back of the flats, i have to leave my daughter in the flat while i put my son in the car. Leaving her for a couple of minutes makes her distress as she gets upset very easily. Also the fact that i leave my son in the car on his own while i get my daughter is not good. This on a daily basis is hard as i have to calm my daughter down for most of the journey. Also carrying her back and from the car affects my back as its beginning to put a lot of weight on me and am now getting back ache.
2.My only support is my mother who lives in another area. This is where i want to be. It is in the same town just 20 min away. I need the support as i feel isolated from my friends and family and would love more help especially as if im not well (have bad asthma) atleast i will have help.
3.As my daughter wakes through the night, this disturbs my son who then cannot have proper sleep.I am then awake trying to put him asleep so i can concentrate on getting my daughter to sleep too. She has had a sleep monitor done as she has irregular breathing through the night. test result on monday.being awake and not having proper sleep affects us all the next day. i feel this interfers with my day to day role of looking after my daughter as i feel drained sometimes even though everyone says im always cheery. Having her own room would benefit both my daughter and my son as he woul get proper night sleep and i could concentrate on her knowing once shes asleep i can too without my son waking up because of the noise.
4. we do not have a garden. This would benefit my daughter greatly as she loves going to the park on the swings especially.Having a garden for gym equipment would not only make her extremely happy but this would be good to strengthen her muscles by using slides etc and taking her to the park constantly (i do regularly) when sometimes its too hard, i can just open the doors and let her play in the garden which she would love.
I am on the bidding site for a suitable property. So far i have given in her latest medical reports and a note from her specialist saying we need more space. Also my daughters care co-ordinator has written 2 letters. so far, the council have said im still down for a 2 bed property. I am so annoyed. I have written to the MP and have contacted shelterline. They said to find out where i am on the list. I am band 2, needs 2 which apparantely is high priority but i have been bidding for 14 months with no joy. Also they said its bes to check councils allocation policy. I rang my my local care place which deals with problems they may help with. They said to speak to my GP and that a lady with 2 girls who 1 has special needs went to the council everyday and in the end they gave her a 3 bed house near her mums for support. I dont know what to do anymore. I seem to be trying. Anyone with similar problem or been through similar thing. Any advice please. much needed. tanya. thanks
#5
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Joined: Apr 2011
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Hi katala
thanks for replying. I actually wrote to my MP and have got a reply.He has written to the head of housing and haas asked them to look at my case again and has wriiten the problems i face. He asked the council in the letter to update him and he would like to hear from me about my situation and if the concil do anything to help. It is annoying. The council wrote to me taday saying they looked at the report i gave them about my daughter and as it says 'mild development delay'( however, other doctors think she has some central brain problems) they feel my daughter and son can share a room.In regards to me leaving my daughter in the flat while i put my son in the car, the council suggested i buy a more suitable narrow double buggy that can fit through my door. It is so annoying but i am not giving up as my daughters needs are too important. I hope everything goes well for you too. Pls let me know about your situation and if it improves.
tanya


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