#1
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Well Euan turned 4 today and as planned for the past few months we are now geared up for the battle with our local PCT for Nappy entitlement.
Currently Euan goes through around 12-15 nappies a day due to his medical condition at LEAST.

However Birmingham have a policy of only offering a maximum amount of 4 nappies per 24 hours.

This is nowhere near enough and the policy is despite there being a letter sent last year from the secetary of state telling all local PCT's that nappies must be given on need and not financial restrictions yet despite this the PCT have not followed this advice and are resisting change.

I am now awaiting a senior manager to contact me with further guidance and so i can refer them to the relevant letter and highlight how there policy is outdated and not allowed.

They have admitted that the policy is due to financial restrictions and nothing else so now the battle begins and im sorry to inform the local PCT that im not resting now and im not accepting a deal for just our family i quite simply will not accept anything less than a full change in policy and i will now be fighting this.

Awaiting this call and will be ensuring that this gets media coverage and we will be fighting this.

How about other people in other areas are you still having this problem?

Anybody in Birmingham who also is victim to this policy who can tell us about there problems?

This will be leading to a full campaign so we need your support Smile
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#2
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good news,
We have a meeting on Wednesday at 10:30am with the head of conteninance services who has given an undertaking to assess Euans needs and address the problem with the current policy and seek advice on it to ensure they are offering the best possible solutions to all families Smile
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#3
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That's a good start. Let's hope they actually do something now and not just talk about it.
Good luck!! Smile
#4
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waiting to here the outcome on this chloe is 4 in june and she too does about 12 to 15 nappies a day due to her colitis!
#5
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update :
well we had the continence nurse manager out today, she was quite nice actually, much nice than the woman who answers the phones! she went through euans condition and care needs, meds etc, i even saved a full nappy for her so she can see how much he fills them. she got her advisory book out and found some specialist nappes they do (euans waist is just about big enough for the extra small lol). these nappies are meant to hold 2litres of urine!! so...i am HOPING that they will last longer than the 2hours a huggies currently lasts. Im not going to hold my breath Dodgy BUT she said we'll trial them for a month and whenever i need more i can just phone her and get them. we'll trial 6 a day to start, she'll deliver a weeks/months worth (cant remember which) in 2 days and if i need more i just ask which is good really!! she also said in future.....when we were discussing about how hes currently constipated, but quite often goes from one extreme to the next, if hes having a bad patch of diarrhea, i can call and she'll get more for me too Blush

am quite pleased really. not going to get my hopes up too much about how absorbant they'll be but would be great if theyre as good as she says! anyone got any experience with them?

xx


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