#1
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Anyone in Derby/Derbyshire area, my son has just turned 3 and has ASD
RSx
#2
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We are not far in birmingham, our son is 3 in march and has a rare condition called cystinosis, he is also undergoing assessments for possible asd but its a very long drawn out process for us, I'm beginning to think I'm imagining it (even though deep down I know their are problems!) How long did it take you to get a diagnosis? Xx
#3
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Hi,
Welcome to the forum and glad you signed up.
Always nice to have new members come on board and say hi.
Feel free to get involved on the forum and make some posts,we are all a freindly bunch and nobody bites....
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#4
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Thanks for the welcome,
When H was 18mths we self referred to speech and lang services and he was diag with speech delay just before his 2dn bday. Over the next year his behaviour deteriorated into self-harm (headbanging, smacking, scratching, choking himself on his fists) and violence towards us if we couldnt understand what he was trying to tell us or we did something 'wrong' he has typical ASD behavioural patterns such as lining up stuff around the house, anxiety with unfamiliar people, places and changes of routine, he also has sensory probs with water; clothing; temperatures and light, sleep disturbance, social interaction problems at nursery, no danger perception ...its quite a long list actually but the problems are subtle and not obvious at all (untill he goes off on a headbanging meltdown when you turn left and not right!!). Speech and lang have referred us to a communication clinic before a paedeatric diagnosis bcos they are certain he has ASD, we also see a specialist community nursery nurse every month to monitor his behaviour - she is also certain he has ASD. We are just waiting to get an official diagnosis next month so in all our journey has been short - from initial concerns to therapy (which to be honest came immediately when he was 2yrs). I have to say at this point that I am a psychologist and so have a bit of an advantage in a)knowledge and b)getting people to take me seriously, which I am convinced is the reason we have been so fortunate to get help very quickly. I have done ALOT of research and have implemented lots of therapy myself without waiting to be told what to do and I keep detailed behavioural diaries - that has helped with 'the professionals' too!
#5
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The diaries is deffernatly something i am strongly considering, i keep sayin i am going to but then i dont. Its very frustrating, like your son our son is quite subtle until you see him in full outburst or lining things up but the child development centre make me feel like these things are normal and like i'm imagining things. I'm at a loss as to what to do next! He attacks us, his sister, his baby brother now too and he picked up some equipment at his last group meeting at threw it at the woman in charge, she shouted stop n he shouted no and did it again! I dont understand what she expects him to do to get any form of diagnosis, he also has lined things up infront of them and built big train tracks but then not been interested in play. I'm holding out for him starting school as they are going to start assessing him for a statement when he starts at the nursery........i did start another thread about his behaviour with pics - might sound familiar!

xx

http://www.parentsofdisabledchildren.co.uk/showthread.php?tid=354&highlight=possible+adhd%2Fasd

xx


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