#6
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thank you for your replies. well i have been given what i think is called a bib (i think). its like a corset. unfortunately the smallest they have is too big for him. i was advised to fold it over but the bones in it go right under his arm and into his arm pits
#7
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Doesn't sound right, my son's were always made specifically for him, loads of measurements!

He originally had a boned one but then went on to different type which was more comfortable. But I think it does depend on how much support that you need

Libby
x
Hi Everyone, I have 2 boys 14 yr old with cp and 5 yr old with speech delay - both gorgeous!
#8
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hi, my son is about to get his 3rd lycra suit he was given it for sensory perception to dampen down his rocking and rolling as well as support. it was measured for him easy enough to put on, lots of zips, covers his whole trunk, back, stomach with short arms and legs a bit like a 1920's swimsuit. i honestly havnt noticed a difference when he has got it on/off but its no trouble and may have long term results. anything is worth a try.
I never thought it would happen to me.
#9
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sorry my answer was short and sweet yesterday (caleb was trying to attack the computer while i was writing, way to get my attention). anyhow, yeah it doesn't look the best. as i wrote in my initial post i just want something which supports his posture. i kind of feel if it helps now and encourages him to sit up then it may help with the scoloisis. it hasn't been diagnosed but it just been commented that it looks like the start. completely agree lexie lamb anything is worth a try. he's away to nursery today where he sees his physio so shes going have a proper look today. what was interesting though she seen him last week and thats when i mentioned it to her, 3 days later an appointment for the specialist came through. might just be co-incidence. the appointments in a couple weeks so we'll see
#10
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Try looking up second skin they do the lycra garments, my daughter has one for her arm and the NHS funded it .. like someone else has said they have photos and measurments taken and everything is made to measure... they used to be able to alter it if it got to small but now they need new every year .. if you find the website i am sure you can apply for a DVD which shows the effects.


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