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has anyone out there got a child with retts syndrombe, my son has only just been diagnosed with it after 18 years.
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Hi Mark
I hope you get this post as i notice it s been a good seven months since you posted, but Hi Im kristine = our daughter who is four has just been given a diagnosis of retts. She has had previous genetic tests completed a couple of years ago but because her presentation didnt fit the normal symptoms it was missed and she didnt get tested for it. Its very early days for us and we have an appointment with the geneticist tomorrow but if you want to share your experiences and discuss things I would be delighted. Take care

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