#11
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(10-19-2010, 11:24 AM)windsor09 Wrote: hello my son has not bein diagniosed but he has got it because the ot has said but all i need now is for someone to look at the report and say he has. i dont have many mums who child is going throught what my child is. i would love to chat to other parents who are going throught the same as me. if someone could inbox me would be great. thanks

I haven't quite done enough messages yet to be able to send you a pm Sad but would be happy to talk to you my daughter to hasn't been diagnosed with it but it has come up in her report and the research I have done on it sounds very apt to Ella! Ella is 3 and 9 months at mo x

#12
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well if u wanna add me on fb my name is emma windsor and my profile pic is my dad holding my son when he was a baby x
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(10-19-2010, 11:20 AM)mrs barden Wrote: hi, my daughter who will be four in January has had the word Dysphraxia used in one of her reports but I'm unsure as to whether or not she has had the full diagnosis of it, If that makes sense, she has been with a peadritician now since she was just over one and has development delays, she only has single words and is not walking, the more i read up on it, the more it sounds like her but my development therapist said to me when she last saw her (September) that she would be very surprised if she got that diagnosis, so I am now very confused?

Hi I was like that too with Jess. We were told she was fine just maybe a bit delayed, then that she had a shake that they couldnt pin point. It was left a while and then things started to move after docs appointments, speech therapy, in school visits by development team,paeds assessment then finally an OT assessment.

I think the trouble with dyspraxia it can be a whole condition on its own with varying ailments (every child being different) but also similar in some aspects to other conditions. So I totally understand your confusion and if you are like I was, you just want an answer so you can move forward and help your little one. Jess got the report following tests she did that in parts were passed with flying colours and in other parts were typical dyspraxic child.

I would be happy to chat some more if you want on here or you can email me ( i can't PM yet as not enought messages posted)
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(10-19-2010, 06:42 PM)windsor09 Wrote: well if u wanna add me on fb my name is emma windsor and my profile pic is my dad holding my son when he was a baby x

emma think i have found you on fb ...hope its u or someones going to think I am nuts. LOL
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(10-19-2010, 09:42 PM)claire_bear Wrote:
(10-19-2010, 11:20 AM)mrs barden Wrote: hi, my daughter who will be four in January has had the word Dysphraxia used in one of her reports but I'm unsure as to whether or not she has had the full diagnosis of it, If that makes sense, she has been with a peadritician now since she was just over one and has development delays, she only has single words and is not walking, the more i read up on it, the more it sounds like her but my development therapist said to me when she last saw her (September) that she would be very surprised if she got that diagnosis, so I am now very confused?

Hi I was like that too with Jess. We were told she was fine just maybe a bit delayed, then that she had a shake that they couldnt pin point. It was left a while and then things started to move after docs appointments, speech therapy, in school visits by development team,paeds assessment then finally an OT assessment.

I think the trouble with dyspraxia it can be a whole condition on its own with varying ailments (every child being different) but also similar in some aspects to other conditions. So I totally understand your confusion and if you are like I was, you just want an answer so you can move forward and help your little one. Jess got the report following tests she did that in parts were passed with flying colours and in other parts were typical dyspraxic child.

I would be happy to chat some more if you want on here or you can email me ( i can't PM yet as not enought messages posted)

that is very true there are so many aspects of dyspraxia is must be hard to for the specialists to diagnose. what was Jess's shake like? Ella has moments (generally when not concentrating hard enough) she has a fit like thing with her hands like if she was holding a cup of juice she will have this weird fit with her arms and spill most the juice. She also gets extremely clumsy when tired.

How old is Jess if you don't mind me asking? be happy to talk somemore xxx


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