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Hi my dd has gdd she's 18 months and physically and mentally, due too enlarged brain ventricles (excess fluid on the brain) also has renal disease and poor weight gain Sad
i'm looking forward to chatting too you all, what help support is everyone getting? my little one attends our cdc and receives pysio, salt, and sees ot, along with a pedi and other specialist, we have just been assessed and she will have 2 sessions from sept. I've got to start thinking of nursery/school after xmas as they are going to start her statement which has really scared me (the ed physiologist was very negative!) ! Did any of you get support choosing a school? i would love her try a main stream school with a ta,
Do your little one's go (or going) to a main stream or specialist school?
Looking forward to getting to know all you claire x
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(07-15-2010, 08:50 AM)claire-belle Wrote: Hi my dd has gdd she's 18 months and physically and mentally, due too enlarged brain ventricles (excess fluid on the brain) also has renal disease and poor weight gain Sad
i'm looking forward to chatting too you all, what help support is everyone getting? my little one attends our cdc and receives pysio, salt, and sees ot, along with a pedi and other specialist, we have just been assessed and she will have 2 sessions from sept. I've got to start thinking of nursery/school after xmas as they are going to start her statement which has really scared me (the ed physiologist was very negative!) ! Did any of you get support choosing a school? i would love her try a main stream school with a ta,
Do your little one's go (or going) to a main stream or specialist school?
Looking forward to getting to know all you claire x

Hi hun, all my support seems to have stopped right now.. as not heard from anyone in months (but i do notice they all come together in a big appointment rush lol) However we are currently under SALT, Physio therapy, Ocupational therapy, ENT clinc, Paediatrition, Alder hey, Sleep Lab & Also being refered for eye tests as school seem to think my stepson is colour blind. (Also waiting on an OP date to have hes adanoids and tonsils removed before he can go for yet another OP to have gromets for hes hearing)
As for the School Q: My stepson is currently in a mainstream school. He was held back a year in nursery as they didnt think he was ok to move on into reception so he is currently in hes 2nd year with 1-2-1 support. But in september they are trying him in reception again with 1-2-1 support (as my other child will start nursery in april and they dont want him being in same year as her if u get me?) but if reception is to advanced for him i think they will then look at a special school.
x
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(07-15-2010, 08:50 AM)claire-belle Wrote: Hi my dd has gdd she's 18 months and physically and mentally, due too enlarged brain ventricles (excess fluid on the brain) also has renal disease and poor weight gain Sad
i'm looking forward to chatting too you all, what help support is everyone getting? my little one attends our cdc and receives pysio, salt, and sees ot, along with a pedi and other specialist, we have just been assessed and she will have 2 sessions from sept. I've got to start thinking of nursery/school after xmas as they are going to start her statement which has really scared me (the ed physiologist was very negative!) ! Did any of you get support choosing a school? i would love her try a main stream school with a ta,
Do your little one's go (or going) to a main stream or specialist school?
Looking forward to getting to know all you claire x

My two girls went to a Mencap nursery here in Belfast called Segal House, and they loved it. http://www.mencap.org.uk/news.asp?id=12833 (my little girl is in the purple top)
Now Nicole (7) goes to a special needs school and Jessica (2) will be joining her in September, we never considered sending them to mainstream as they have no speech etc.

My son Terry has moderate learning difficulties and was in mainstream schooling for 4 years, with an assistant teacher, but he started getting little jabs from some students (which does happen) about having a teacher beside him and also a few wee comments from the main teacher, so we decided to move him to a MLD school and let me tell you it was the best decision we ever made, he's not under any stress anymore, so no more tantrums about going to school and he's actually taking in the information because its a slower pace (mainstream went along to fast and the gap between him and the other students was widening).

The statement can be frightening because everything that you know is down on paper and can be disheartening but it needs to be done to get the services that your child needs. A brilliant thing i found when the girls went to school is that all there therapies are done inside the school so no more running about (well except for the hospital).
HeartHeart Stacy HeartHeart
Mother to Terry 10 MLD + ADHD, Nicole 9 Cri-du-chat Syndrome ADHD Asthma GDD Coarctation, Jessica 4 Cri-Du-Chat Syndrome GDD Reflux
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Hi Lea, Thanks for your reply,bless him i know he hasn't been diagnosed but do you know what is causing his probs? was he prem? , at least you are giving him a shot at main stream that's what i want if it isn't successful at least we've tried Smile But i'm not that impressed with my middle daughters school, although my son went there and sailed through but my 9 yr old is struggling and we think she as dyslexia and we voiced our concern in oct but nothing has really happened even though her teacher agrees there is something there? so i'm going to have to look around!
but how do you get information on the best schools for special needs? we have 1 more map meeting in 6 months so hopefully we will get some help/advice then.
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My two girls went to a Mencap nursery here in Belfast called Segal House, and they loved it. http://www.mencap.org.uk/news.asp?id=12833 (my little girl is in the purple top)
Now Nicole (7) goes to a special needs school and Jessica (2) will be joining her in September, we never considered sending them to mainstream as they have no speech etc.

My son Terry has moderate learning difficulties and was in mainstream schooling for 4 years, with an assistant teacher, but he started getting little jabs from some students (which does happen) about having a teacher beside him and also a few wee comments from the main teacher, so we decided to move him to a MLD school and let me tell you it was the best decision we ever made, he's not under any stress anymore, so no more tantrums about going to school and he's actually taking in the information because its a slower pace (mainstream went along to fast and the gap between him and the other students was widening).

The statement can be frightening because everything that you know is down on paper and can be disheartening but it needs to be done to get the services that your child needs. A brilliant thing i found when the girls went to school is that all there therapies are done inside the school so no more running about (well except for the hospital).
[/quote]

Hi Stacy, Thanks for the link i'll look at that.
I'm pleased in one way about the statement as like you say she'll get the extra help she needs, but It's so confusing as some professionals are so positive and others are so negative! and not really thought about school until her assessment, also my hubby is in denial and think someone is going to wave a magic wand and she's going to catch up! so it's really hard i wish i could see 10 years into the future and stop worrying and be prepared Smile


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