#21
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Fragile X Society
Support Group for Fragile X hope it is of some help

Tel: 01371 875100
Email: info@fragilex.org.uk
web page fragilex.org.uk

The Society is a Registered Charity in England and Wales No. 1127861 and a Charitable Company Limited by Guarantee No. 6724061, established in 1990. It offers support, information and advice to affected families and professionals. It publishes a newsletter, has a wide range of information available and provides opportunities for families to meet others and share experiences. The Society has over 1,700 members.
We fight to protect our Children, and we continue to fight, challenge and Win for our children's sakes no matter what their age to give them a better life. We find an inner strength to do what we need to do and remember you are never alone!!!
#22
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I have a reply about Connors statement saying it has been refused. The school SENCO is not happy about the decision (neither am I) so I have a meeting with her tomorrow morning so she can talk me through her plan of action.
#23
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(09-13-2010, 11:40 AM)mummy 2 connor Wrote: I have a reply about Connors statement saying it has been refused. The school SENCO is not happy about the decision (neither am I) so I have a meeting with her tomorrow morning so she can talk me through her plan of action.
Oh no!!!! Sad
Good luck with the meeting and hopefully the senco will rise to the challenge ahead.
Did they offer any reasons for refusal?
May i also urge you to now contact IPSEA who are an independent charity specialising in educational law who will help you fight this free!
There website is:
http://www.ipsea.org.uk/
Unlike parent partnership IPSEA are an independent organisation who truly go out to ensure that the childs needs are the main priority and not cost.
Some people swear by parent partnerships but sadly ive heard to many cases of them issuing biased advice Dodgy
So really please do call IPSEA and ask them for help.
Let us know how the meeting goes.
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Sensory toys for children with special needs CLICK HERE
#24
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My son had problems from day 1 at school, none of his schools would help and felt a statement was not required. Eventually just before he was due to start middle school (3 tier system in our county) we threatened to take him out of school. We found the charity Cerebra and they suggested we try a local special needs school - we went to see the head master and he agreed that his school was for our son, we used letters from Cerebra and his hospital and GP and after 3 panel meetings he was given his place at the school. As all special school children need a statement he was statemented as soon as he arrived. Our method was unorthodox but it worked. He is a much happier boy now that he has the right input. This was all done, by the way, without a formal diagnosis of his condition (which we knew deep down but could not prove). So keep at it and if you think a special needs school might be the answer go for it whichever works - dont give up - we had tonnes of setbacks but never accepted them. Take care all the best xx
#25
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She had his consultant at the school today to write another report. She is also getting the Ed psych to come in and see him - she has tried before but in our area they say they don't need to come out!! But she is not accepting this. She is also getting his teacher to write up lots of reports etc. I have been told she hopes to have all the info to be resubmitted by the Oct half term so fingers crossed.

She was really angry that they refused without even seeing him, she said how can they make that decision sitting at a desk without even seeing the child. The refusal was made within 3 weeks of the request too!!


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