#1
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Hi i'm Jayne & am a parent to 5 children my eldest is 20 & doesn't live at home anymore.
I have 4 living at home who are lana 15, cj 13 ,dex 11 & logan 8. Two of my boys cj & logan are being assessed for aspegers which has been a huge battle to get someone to listen. Logan also has problems with his bowel & has very dry skin due to all the bathing & showering.

I'm so glad to have found this forum as already i've been given support
Thank you

jayne
#2
Posts: 12 | Threads: 3
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hi.

i have 2children one is 2 1/2 (Khian) he suffers from a very rare disorder called Zellwegger Syndrom, this effects his eyesight, hearing, epilepsy, hypermobility,he has no speech. i particuarly find it difficult going out and talking to other people as i dont like to feel sorry for myself, i love khian a huge amount and think that is all that matters although my life has just become a little harder as we have had my second son Marlei his is just 8weeks old and so far doesnt have problems so fingerscrossed he is all okay. Shy


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