Hi there, I'm new here and just saw your post, my daughter has septo-optic displaysia along with other neuro conditions, so
Mum to 3 gorgeous girls Bethany (12), Amyrose (7) and Chloe (4). Chloe has Septo-Optic Displaysia, Bilateral Schizencephaly, Microcephaly, Lissencephaly, Spina Bifida Occulta, Global Developmetal Delay and Epilepsy. But has a smile that can light up the grumpiest persons day!
Hi, my daughter has SOD. she also has pachygyria. She was diagnosed in her first year. Since then she has progressed in leaps and bounds. When she was 2 we tried vision therapy. However when they tried to introduce a seeing cane and braille I immediately discontinued the services. Everyone treated me like I was crazy but I knew my daughter didn't need it. Today she colors, names pictures in books and even recognizes some alphabet letters.
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