#6
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[hi i stay in glasgow,my son has cortical visual impairement which is a bit similar to septo optic dysplasia.he has cerebral palsy,epilepsy,jejunostomy fed,and has dislocated hips.
bathgates a fair bit to travel but if youd like to meet up we could meet in glasgow city centre if you like,with or without the Children.Heart
ps my son is 8 so have been through a fair bit.
#7
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hey im in edinburgh xx james has lissencephaly and epilepsy xx
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#8
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(09-09-2010, 11:47 PM)marisaxx Wrote: hey im in edinburgh xx james has lissencephaly and epilepsy xx

hi thanks for your rply what age is you son?
Mummy to a very special little girl with Septo optic dysplasia, Diabetes Insipidus, Adrenal supressant and Infantile spasms.
#9
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any one in south wales?
#10
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james is 5 now huni xxx
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