#1
Posts: 3 | Threads: 1
Joined: Oct 2009
Reputation: 0

  • Registered
Hello,
Im new around here and hopefully i can get a little help or reassurance from other members.
I have three children. My oldest boy is on the autistic spectrum and my youngest Son has some problems. I also have a young daughter who is fine even though shes very cheekyAngel

My son has been showing some autistic tendiences since 12 months - he is now 4 years.
My health visitor also has commented that she thinks there is something wrong with him.
He is also being monitored for speech and language issues.
Yesterday we went to a party - he was ok,until one of his nursery teachers turned up - she has an autistic child. My son was upset as he could not work out why she was there - it was wrong in his head and he was really confused by it all.

Yesterday we went to another tots group and he was screaming no school and hitting himself. When he is like this you cant calm him down. I explained it was at mum and tots and he eventually calmed down but walked all the way there going playgroup and repeating this over and over again.
#2
Posts: 430 | Threads: 27
Joined: Oct 2009
Reputation: 0

  • Registered
are you having any assesments? maybe you should give playgroup a miss until things go back to normal, maybe a trip to the park just for a few sessions.

i have 3 children, my oldest son is 10 and has no problems, my other son is nearly 6 and is on the autistic spectrum with adhd, my youngest daughter is 3 1/2 with a diagnosis of autism.

my son (who has ASD and adhd) often gets very upset about places that have had minor changes. he cant cope and gets violent, 'no school' is a fave of his to shout over and over. and a least 5 times a day he gets into such a state over little things that he is 'unreachable'. he cant seem to make connections. he cant cope when theres lots of other children but he is lovely with little children. he had a 26 week assesment from a play threapist and it was her diagnosis that he is between 22 - 36 months of mental age and all his school assesments are the same. he has alot of behavioural and emotional problems, he has speech and lanague problems. hes a constant stimmer too and he has to be flapping his hands around or hopping, or swinging toys around.

my daughter on the other hand is totally different - she is very aloof, she is non-verbal, she cant express any of her needs even by crying (she does cry but not for food or a drink or if she has hurt herself - she crys if something has scared her), she is unaware of weeing or soiling herself, she seems unaware of other children and she just likes to run around laughing and giggling (which cant be bad;-)). but when you need her to do something she throws an almighty strop and she hardly ever gives eye contact she just pulls down to the floor and starts headbutting it. she is totally unaware of danger so i have to constantly watch her as well as sorting out my other sons problems. my son cant cope with her and it just often ends up in them fighting.

i tried to take them to our nursery charity event and there were other children there and we tried to give it ago but my daughter couldnt cope she was running around grabbing other children and screaming at them, it was awful seeing her suffer so much i ended up just plucking her off the floor and carrying her home.
#3
Posts: 3 | Threads: 1
Joined: Oct 2009
Reputation: 0

  • Registered
Thanks for the reply.
Things just seem unnormal as such.
As i said the issues with the speech and language also worry me.

I think it will be a trip to the doctors to see if they can get an assement made.

What do the assements entail?
#4
Posts: 430 | Threads: 27
Joined: Oct 2009
Reputation: 0

  • Registered
what kind of assesment did your older boy have? and where about do you think he is on the spectrum? low on the spectrum is classed as the really severly mental delayed, middle (is where my daughter is) she has some basic play skills - but no self care skills or expressive skills kind of like a 12 - 18 month old baby her understanding is between that, high end being where theres no problem commuincating but some social skills are delayed and are sometimes routine bound. these are just my own quick thoughts on the spectrum i could be totally wrong as i dont quite understand it myself.

ive had years and years of assesments for my son, usually involves the health visitor coming out and asking some questions and they will watch your child in your home usually playing in the living room (i always turn the tv off) then you can tell her your worrys. mention the times when things have ended in a tantrum or violent behaviour and mention times when hes been withdrawn. even if it over silly things. such as i took my daughter to the supermarket in the buggy, i got my stuff for dinner and went to pay everything was fine. but i then realised i had forgotton chicken and i had to go back in - my daughter had a complete meltdown and was headbutting the side of the buggy it was awful but its a good example that she expect things to happen in a certain order and cannot cope with little changes. even though she seems unaware of things and in her own world she still has major meltdowns over tiny things.

my older son gets upset over everything and a journey to the shop is hard work. he notices and get distracted by everything and he gets into such a state hes seems 'unreachable'.

i would talk to school (nursery?) too as if he has learning difficulties you will need to get the extra support in place before he starts full time. most assesment just include a detailed chat and they will ask you lots of questions about how they were as a baby (first milestones and stuff ike that) they will want to know about times he gotten upset. other assesments will take place at school.

my sons has been ongoing for nearly 4 years with them only now saying 'learning difficulties, speech and language delay and autistic traits' - if they can get away with not labling them with a dx they will, and ive had to fight for all the extra help he has got. on the other hand my daughters assesments went really quickly with her having a dx even though shes only 3 1/2 years old
#5
Posts: 1,853 | Threads: 41
Joined: Oct 2009
Reputation: 13

  • Administrators
My son is 2 1/2 and has a rare inherited disorder called cystinosis, its a complex medical condition, however he is also being assessed on his development. We attend a child development centre where he sees a play specialist, teacher, speach therapist and a physio altogether. They put him in a nursery type room, sometimes with another child who is also being assessed to see how he interacts socially. Then over a period of 2hours a day for 2 days they watched him play with different toys, got him doing different activities to see if his gross motor skills are in line with others his age (they have tick sheets and when they observe him doing something they tick it off.) They took away all the information they noted and had a muti-disciplinary meeting to discuss their overall thoughts and then I had to go back and discuss their findings.

At the time (he was about 20months) they said he had some delays in his gross motor skills, delayed speech and some attention issues. In may this year I took him back just to see the physio and assess his gross motor skills, they were still behind for his age so they have booked him another assessment for this month (he is now 2 1/2).

They phoned and spoke to the nursery he used to attend to see if they had any concerns, his speech has improved immensly, however they said they had concerns over the way he interacts with other children....or more his lack of interaction. He does not like other childrens company, he will sometimes play with his older sister but often if she tries to involve herself in his play he bites her n throws toys at her.

Becky, did your children not attend a child development centre for assessment at all? and who was it who finally came to the diagnosis of ASD?

Child development centres also have a paediatrician attached to them who the child is assessed by.

Lucy x


Users browsing this thread: 1 Guest(s)