hi i was wondering if anyone had any info on this and who its available for and how much does it cost and so on and so on ?? Thanks

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Mummy to a very special little girl with Septo optic dysplasia, Diabetes Insipidus, Adrenal supressant and Infantile spasms.

you need to be assessed by your local social services, the criteria varies from area to area and is also dependant upon family circumstances, the severity of disability and unfortunately how much money is avaliable in their budget. but for most families SS are usually able to provide something even if its direct payments for some babysitting. we are very lucky, we have 24hrs a week with a registered nurse and jacob actually goes to her house so its a complete break for us all. do you have a social worker?
carrie x

(09-10-2010 01:54 PM)logan_jacob_mummy Wrote:  you need to be assessed by your local social services, the criteria varies from area to area and is also dependant upon family circumstances, the severity of disability and unfortunately how much money is avaliable in their budget. but for most families SS are usually able to provide something even if its direct payments for some babysitting. we are very lucky, we have 24hrs a week with a registered nurse and jacob actually goes to her house so its a complete break for us all. do you have a social worker?
carrie x

I just called today to see about getting a social worker as i feel im missing out on things that i could be receiving.

do you have a health visitor or whatever the equivalent is nowadays as if your child falls under health (and that includes behavioural problems) it might be worth finding out if there is a health respite centre as they tend to give more time than ss, matt started off there for a few years until they decided he didnt have behavioural problems now he was toilet trained and could feed himself hehe and he then went to ss but when he is 18 his transistional social worker is going to see if he qualifies for health (ss removed him from respite due to behavioural issues hehe) which would mean he can stay where he is now as its private and costs ss a lot of money

Direct payments maybe your best option but respite units also offer alot as well.
Be prepared to wait a good while for the social worker to make an assesment and they always say how busy they are so you will need to pester and pester them
What local authority are you under and ill get your areas local details.