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Poems and words of motivation for parents of disabled children
02-07-2010, 11:38 PM
Post: #1
Poems and words of motivation for parents of disabled children
Right following a suggestion on another thread i thought why not start a thread where people can share poems or motivational words.
They can be poems a member has wrote themselves or ones which have been wrote by other people.
When using poems from other people though please place there name at the bottom of the poem.

Poems i feel are a way that can express all types of emotion in a way that words alone can struggle to do so.
It would be great if members get involved.

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02-07-2010, 11:51 PM (This post was last modified: 02-07-2010 11:52 PM by Daniel. Edit Reason: N/A)
Post: #2
RE: Poems and words of motivation for parents of disabled children
"I Do Talk To You"

I know you can’t hear me....but I do talk to you.

And I hear everything you say to me too.

I hear when you laugh, when I do something funny.

I hear you yell "Hooray" when I try so hard.

I hear you tell others how you’d never trade me for the world even with all the trials I came with.

I hear you thank God for what a blessing you have been given.

I hear you encourage me when I can almost do it.

I hear you cry, too, when it gets a little harder

And when you ask God "Why?!" your baby.

And I know you know I understand somehow.

And you know I listen when you talk to me too.

But, I want you to know, mom...........

I do talk to you.

Jessica Soukup 1998

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02-08-2010, 12:53 AM (This post was last modified: 02-08-2010 12:57 AM by Dawn. Edit Reason: )
Post: #3
RE: Poems and words of motivation for parents of disabled children
Heaven’s Very Special Child

A meeting was held quite far from earth
It's time again for another birth
Said the angel to the Lord above
This special child will need much love
His progress may be very slow
Accomplishments he may not show
And he'll require extra care
from the folks he meets down there
He may not run or laugh or play
His thoughts may seem quite far away
In many ways he won't adapt
And he'll be known as handicapped
So let's be careful where he's sent
We want his life to be content
Please Lord, find the parents who
Will do a special job for you
They'll not realize right away
The leading role they're asked to play
But with this child sent from above
Comes stronger faith and richer love
And soon they'll know the privileges given
In caring for their gift from heaven
Their precious charge, so meek and mild
Is "HEAVEN'S VERY SPECIAL CHILD"

- Author Unknown
Special Children

God gave this child to you to guide,
to love, to walk through life beside.
A little child, so full of charms,
to fill a pair of loving arms.
God picked you out because He knew
how safe His child would be with you.

- Author Unknown
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02-08-2010, 11:31 AM
Post: #4
RE: Poems and words of motivation for parents of disabled children
WELCOME TO HOLLAND
by
Emily Perl Kingsley.

c1987 by Emily Perl Kingsley. All rights reserved

I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......

When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.

After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."

"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."

But there's been a change in the flight plan. They've landed in Holland and there you must stay.

The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.

So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.

It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.

But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."

And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.

But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

4
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02-08-2010, 01:18 PM
Post: #5
RE: Poems and words of motivation for parents of disabled children
Welcome to Holland - Part 2

I have been in Holland for over a decade now. It has become home. I have had time to catch my breath, to settle and adjust, to accept something different than I'd planned.

I reflect back on those years of past when I had first landed in Holland. I remember clearly my shock, my fear, my anger - the pain and uncertainty. In those first few years, I tried to get back to Italy as planned, but Holland was where I was to stay. Today, I can say how far I have come on this unexpected journey. I have learned so much more. But, this too has been a journey of time. I worked hard. I bought new guidebooks. I learned a new language and I slowly found my way around this new land. I have met others whose plans had changed like mine, and who could share my experience. We supported one another and some have become very special friends.

Some of these fellow travelers had been in Holland longer than I and were seasoned guides, assisting me along the way. Many have encouraged me. Many have taught me to open my eyes to the wonder and gifts to behold in this new land. I have discovered a community of caring. Holland wasn't so bad. I think that Holland is used to wayward travelers like me and grew to become a land of hospitality, reaching out to welcome, to assist and to support newcomers like me in this new land. Over the years, I've wondered what life would have been like if I'd landed in Italy as planned. Would life have been easier? Would it have been as rewarding? Would I have learned some of the important lessons I hold today?

Sure, this journey has been more challenging and at times I would (and still do) stomp my feet and cry out in frustration and protest. And, yes, Holland is slower paced than Italy and less flashy than Italy, but this too has been an unexpected gift. I have learned to slow down in ways too and look closer at things, with a new appreciation for the remarkable beauty of Holland with its' tulips, windmills and Rembrandts.

I have come to love Holland and call it Home.

I have become a world traveler and discovered that it doesn't matter where you land. What's more important is what you make of your journey and how you see and enjoy the very special, the very lovely, things that Holland, or any land, has to offer. Yes, over a decade ago I landed in a place I hadn't planned. Yet I am thankful, for this destination has been richer than I could have imagined!

Author Unknown
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02-08-2010, 02:19 PM
Post: #6
RE: Poems and words of motivation for parents of disabled children
dont know the author of this but a friend sent me it on bebo ages ago & i thought id share it with you all! it helped me through some shaky times! Smile

Ten Commandments for Parents of Special Needs Children

1. Take one day at a time, and take that day positively. You don't have control over the future, but you do have control over today.

2. Never underestimate your child's potential. Allow them, encourage them,expect them to develop to the best of their abilities.

3. Find and allow positive mentors: parents and professionals who can share with you their experience, advice, and support.

4. Provide and be involved with the most appropriate educational and learning environments for your child from infancy on.

5. Keep in mind the feelings and needs of your spouse and your other children. Remind them that this child does not get more of your love just because they get more of your time.

6. Answer only to your conscience: then you'll be able to answer to your child. You need not justify your actions to your friends, relations or the public.

7. Be honest with your feelings. You can't be a super-parent 24 hours a day. Allow yourself jealousy, anger, pity, frustration, and depression in small amounts whenever necessary.

8. Be kind to yourself. Don't focus continually on what needs to be done. Remember to look at what you have accomplished.

9. Stop and smell the roses. Take advantage of the fact that you have gained a special appreciation for the little miracles in life that others take for granted.

10. Keep and use a sense of humor. Cracking up with laughter can keep you from cracking up from stress.
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02-08-2010, 02:56 PM
Post: #7
RE: Poems and words of motivation for parents of disabled children
The Special Mother, by Erma Bombeck.

Most women become mothers by accident, some by choice, a few by social pressures and a couple by habit.

This year nearly 100,000 women will become mothers of "special" children.

Did you ever wonder how mothers of "special" children are chosen?

Somehow I visualise God hovering over earth selecting his instruments for
propagation with great care and deliberation. As He observes, He instructs His angels to make notes in a giant ledger.

"Armstrong, Beth; son. Patron saint, give her Gerard. He's used to profanity."

"Forrest, Marjorie; daughter. Patron saint, Cecelia."

"Rutledge, Carrie; twins. Patron saint, Matthew."

Finally He passes a name to an angel and smiles, "Give her a "special" child."

The angel is curious. "Why this one God? She's so happy."

"Exactly," smiles God, "Could I give a "special" child to a mother who does not know laughter? That would be cruel."

"But has she patience?" asks the angel.

"I don't want her to have too much patience or she will drown in a sea of self-pity and despair. Once the shock and resentment wears off, she'll handle it."

"I watched her today. She has that feeling of self and independence that is so rare and so necessary in a mother. You see, the child I'm going to give her has their own world. She has to make them live in her world and that's not going to be easy."

"But, Lord, I don't think she even believes in you." God smiles, "No matter. I can fix that. This one is perfect - she has just enough selfishness." The angel gasps - "selfishness? Is that a virtue?" God nods. "If she can't separate herself from the child occasionally, she'll never survive. Yes, here is a woman whom I will bless with a child less than perfect. She doesn't realize it yet, but she is to be envied. She will never take for granted a “spoken word”. She will never consider a “step" ordinary. When her child says Mummy for the first time, she will be present at a miracle, and will know it!"

"I will permit her to see clearly the things I see...ignorance, cruelty, prejudice....and allow her to rise above them. She will never be alone. I will be at her side every minute of every day of her life, because she is doing My work as surely as if she is here by My side". "And what about her Patron saint?" asks the angel, his pen poised in mid-air.

God smiles, "A mirror will suffice."

I need a large one 54
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