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No Small Bowel, living on TPN
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Hi Everyone. Our beautiful Son was born on the 20th January 2012. He lost all his small bowel so he will never be able to eat. He is only alive because he is given TPN however St Thomas have never seen a case as bad as his so they are unsure how long he can live on TPN and since ALL his small bowel tissue was dead we have no other option but a transplant but they are still very new and unsuccesful. It would be great to speak to other parents in a similar situation about how we can give our Son a better life and also what kind of help we can expact as he will require 24 hours medical supervision if we get him home. Thanks Thomas |
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#1
02-09-2012, 11:20 AM
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