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Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

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No direct payments
cheapsensorytoys
We applied to see if we could have direct payments to give me and hubby a break, just had a phone call to say that we have been turned down.
so now will have to struggle with the Children. I have forgotten the last time me and hubby had a night to ourself
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#1 09-19-2011, 03:01 PM
cheapsensorytoys
I am sorry to hear that, did they give you a reason why you were turned down? We were refused a couple of months back and told because we weren't a family in crisis!

Things can be hard on occasions but well worth it!Heart
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#2 09-19-2011, 05:46 PM
When was the assesment made?
Did they carry out a full assesment and in this assesment did you explain how this was affecting you as a family unit?
Its very common for people to say they are coping well because they fear social services although its not a child protection social worker.
Intresting to hear from you

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From sensory toys to a brand new range of special needs bibs:
www.cheapdisabilityaids.co.uk
Our Irish members can also use our new website for Ireland which is

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#3 09-19-2011, 06:11 PM
(09-19-2011 06:11 PM)Daniel Wrote:  When was the assesment made?
Did they carry out a full assesment and in this assesment did you explain how this was affecting you as a family unit?
Its very common for people to say they are coping well because they fear social services although its not a child protection social worker.
Intresting to hear from you

it was done last week and we did explain how it was effecting us all, they said because my parents live close they can help.
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#4 09-19-2011, 09:09 PM
cheapsensorytoys
well that just makes my blood boil. ~The whole point of direct payments is to take the strain and pressure off family members, regardless of how close your parents are, you should still be entitled to some support from services. We have a piddly 6 hours of respite a month which is split into 3 hours every other Tuesday so me and hubby can go out. Our OT is battling with chld team as she believes it should be increased as he is so hyperactive and doesn't sleep, so she wants us to have night time support. As you can imagine though, the child team are digging their heels in, but she isn't letting go.. she now has written to the team manager and demanded ajoint assessment with herself at our home lol.. she's like a little pit bull!! Have you got anyone onside like OT or family key worker?

Keely x
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#5 09-21-2011, 08:39 AM
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