Hi Just wanted to say massive hugs and I know how hard it is you feel like you are going to . Anyway just my thoughts. I have a 17 yr old ASD, 7 yr old ASD and a normal for want of a better word 5 yr old. When Alex (17) was little we used to go to places cinema, seaside, bowling and he hated it. Had meltdowns everytime but as I had three youngish stepsons at the time we could not and WOULD not ruin their childhhod memories by not going out. So for about three years until aex was about 7/8 we split ourselves up and either my husband or I stayed at home or in the tent with Alex and the other parent had a good time with the Children. We took it in turns. It was miserable but as he got older and the Children would come back with stories he would start to say I want to go. The first two or three times we all went bowling he and I came out early as he was wow! sensory overload but gradually he did not want to be left out so he came and joined in. This worked for the cinema, funfairs everything. My stepsons now say thats why they liked me as I did not put the desires of him before them and that has made me very proud. I do the same now with my daughter if TJ does not want to go somewhere I find someone to sit with him however for the first time this half term he has come out and stayed to pizza hut, 2 cinema trips and a bowling session. Mind you he has had two seriously bad meltdowns when I took him to buy shoes and a coat but we will gloss over me hauling him out of the schoolwear shop because he was knocking all the stands over It is really hard to do your best for them but I find a mixture of things we have to do so learn to put up with it and a this is fun so you don't have too do it works best in the long run x x

HI

I have yet to experience anything like you describe but I just wanted to acknowledge your post. It must be so difficult to deal with and i can understand why you have so many concerns. If I was you I would ask to see a second consultant and sooner rather than later. I know we have to fight a lot of the way but you just need to keep going. I asked to swap someone in our 'team' as I wasn't satisfied with the help we are getting. I think I got to the point where I thought stuff this, I am going to insist we have someone else. I don't care if they think I am difficult or pushy.

I hope you have better days soon.

By the way don't come on here and tell me who it was in Eastenders as I am recording it. Will be off to watch in 30 minutes lol.

Linzi
x

(02-19-2010 08:53 PM)linzi74 Wrote:  By the way don't come on here and tell me who it was in Eastenders as I am recording it. Will be off to watch in 30 minutes lol.

Linzi
x

It was....................................................................................................................................

Dum Dum Dum Dum...................

Dot Cotton

(02-19-2010 08:55 PM)Daniel Wrote:  

(02-19-2010 08:53 PM)linzi74 Wrote:  By the way don't come on here and tell me who it was in Eastenders as I am recording it. Will be off to watch in 30 minutes lol.

Linzi
x

It was....................................................................................................................................

Dum Dum Dum Dum...................

Dot Cotton

Well, well, well..............thought acting wasn't that great when done live!!

Hi Daniel,
I'm new to this forum but here goes. I had same kind of problems especially when my George was younger. Have you ever considered taking photos of the places you may be visiting and letting Euan see these and even hold them when you're on route?

Not sure of his level of receptive and expressive language but have you heard of PECs Picture Exchange Communication? Have you got a Social Worker as having one holds a lot of weight with getting seen by other proffesionals. We fund raised for and eventually got funding from the authorities to do Applied Behavioural Analysis program which worked so well for George.

We got on top of his behavioural difficulties and he learned in a very structured way. He's 12 now and I'm so proud of where he is now. He used to be a very frustrated little boy who used to lash out and bang is head. You talking about Euan brings those memories back and I totally empathise with you. Getting the right kind of help for George was not available in Norfolk (as is usually the case) so we did it ourselves.

There are schools around the country teaching ASD children using ABA and the Treehouse school in London that was originally set up by parents (one being Nick Hornby) is now funded by the LEA. If you could afford it I have the numbers and address of a Dr Maggie Anderson who is an Autism Specialist.

She worked with my George for a while and is brilliant. If you're interested I can e.mail some more details but she does charge for her work. It may also be a good idea to keep a log of these behaviours and chart it- date. approx time. place. what happened before the behaviour (antecedant), describe behaviour, your response, duration etc. you're probably thinking you've got enough to cope with as it is but this kind of record is so useful for you to see as well as other proffessionals. You also have concrete evidence of the kind of behaviours by Euan and the stress you're under. Let me know if you'd like Dr Maggie's details. She's also written a book.
Am off to bed now but can have more info.for you tomorrow.
Paula