cerebral palsy

[niknok]

hi all new to site my daughter is 7 and suffers with cerebal palsy, she is happy little soul very dependant on wheelchair saw few ov us got lot ov similar things in common would love to chat more to ppl.
nikki xx

[missy]

Hi there my little boy has just been diagnosed with distonic cp and was wondering if anyone had any advice or experience of this condition we were only diagnosed 2 days ago and would like some insight.your experiences give us hope and make us feel like we are not alone Many thanks

[kerryhawk]

Hi all iam new to this site too my little boy is nearly 2 years old he has athetoid/dystonic cerebral palsy he cant hold things in his hands use jhis arms or legs in any purpose way he cant support his head sit crawl or anything.He is tube fed completely now after swallow xray showd he was a silent aspirator and that he took 3 swallows to try and swallow 1ml of milk so they said it was too dangerous to feed him and that he would be tube fed indefinately. He is profoundly deaf in both ears as well and suffers from gerd he is a very happy wee boy and too look at him u wouldnt think there was anything wrong with him we are waiting peg tube insertion


After coming across this site it is really good to know that we r not alone and that everyone is going through similar experiences

[niks99]

hi, i am new to the site and trying to find out information. i have a 7 year old daughter born at 27 weeks gestation with birth weight of less than 1.5 pounds. She has been going to mainstream school which she enjoys and has friends, she uses a wheelchair and walking frame. she was unable to walk with her walking frame till she had her hamstring lengthen when she was about 4 now she complains her feet are itching her a lot and the school goes have been giving me hugh hints that she is not improving in her learning as she does not remember things learnt and it appears her needs both physically , mentally and emotionally are not what they can deal with. what should i do

[Dela07]

Hi i have a 22 month old boy who suffers from cp on a more serve scale.He's not able to walk, talk or swallow. I'm finding it ok now but I'm worried for the future.