Any body out there got a young child with cerebella ataxia

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Any body out there got a young child with cerebella ataxia

Polo mum Offline

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Hi I have a 23 month ol who has been diagnosed with cerebella ataxia with retinal dystrophy and peripheral pigmentation. He is still undergoing various tests to find the cause and which type he has. He is getting worse so quickly. He can already not walk or speak. HELP!! It's devastating to see him like this. I just wondered if any one was in the same position and would like to chat.

#1 02-05-2012, 09:49 PM

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