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Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

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im back so much has happened since my last visit
cheapsensorytoys
hi guys im back after almost 2mths god so much has happened and im very overwhelmed by everythin and i dont know where 2 start really.

my son was suspended from school 6 wks ago 4 lashing out at the teacher because she shouted at him 4 not understanding his work thin is though i warned the school that brandon has central hyperacausis hearing condition which makes him lash out if he hears loud noises and hes waiting 4 his aspergers syndrome assesment.

now the school said they didnt want 2 suspend him but it was the only way they could help move things along quicker 4 brandon by gettin the rapid response team in and 2 the schools credit it has worked brandon now has his assesment date, he has 2 lsa in his class and they r discussing with camhs about a statement of education ( i have no idea what that is ).

we now have a family link worker who is lovely and we r waiting 2 c if we can get help with takin brandon out 4 days out which would b amazing since i have been house bound with him 4 the past year.

ill admit that im struggling 2 cope with the situation my husband tries 2 understand and help but he doesnt know how 2 cope either and to add to my struggles my dear grandad passed away on sept 11th after a long hard fight againt illness and i havent even had time 2 deal with his death let along greive im findin everythin so hard 2 deal with at the mo feel like my head is going explode but i cant break down cause i have 2 b strong for brandon and aurora they cant c their mum a nerveous wreck but i dunno how much more stress i can deal with.

i know brandons assesment is in 3 wks but its 24/7 with him and im exhausted im on my knees i dunno what 2 do.

sorry 4 the rant xxxx
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#1 10-20-2010, 08:30 PM
cheapsensorytoys
I'm confused!? Did you start a new profile because you lost your password !? I can merge them if soo....
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#2 10-20-2010, 09:16 PM
Hi Ambie - welcome back! You need to get rid of some of your stress - you need to have a good scream and cry!!! Is there anywhere you can go for a couple of hours by yourself - an understanding friend maybe? Believe me, it won't make everything okay - but you'll feel better and more able to carry on.

I'm really happy for you that you are getting some support at school for Brandon - that big long dark tunnel that we often find ourselves in might just start shining a light for you!! xx
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#3 10-21-2010, 07:49 PM
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