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Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

The forum was created by parents who have children with special needs and is run by parents so we are all in this together. With us you will realise you are not alone

Parents of disabled children launched in October 2009 and we are growing day by day and are fastly becoming a major support resource for all




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Is there any body our there with a child with spina bifida
cheapsensorytoys
Hi I just wondered if there was anybody out there who has a child with spina bifida and hydracephalus.
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#1 10-19-2010, 10:05 AM
cheapsensorytoys
hi

i have a little boy (well he is 6 next month) Ryan has spina bifida and hydrocepalus,he uses a wheelchair,he is at mainstream school which he loves.

he had a new shunt fitted 3yrs ago,fingers crossed he still ok, we catherterize him 6 times daily

i am here if you want to chat xx
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#2 10-19-2010, 11:53 AM
Hello, I have a seven year old Son Daniel with Spina bifida and Hydrochephalus, he had a shunt fitted at birth and attends a special needs school. He is a full time wheel chair user and has severe learning difficulties, but is the happiest child you could ever wish to meet.
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#3 01-05-2011, 06:46 PM
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