Thank you so, so much Daniel, for the first time in years I finally feel someone understands my situation.

Yes her health is suffering (as is ours as parents), she is petrified of the bath, she thrashes around which often results in Grand Mal seizures. So very scary when she turns blue and there is nothing you can do except administer rectal diazepam. Then she is covered in bruises from thrashing around. I have fallen downstairs three times due to my daughter panicking whilst being carried upstairs. It does not take much to be put of balance

Goodness, if I am coming across as moaning I apologise profusely

No carry on,
we all need to let off some steam.
To be fair when i read stories it really does make me angry that we live in a country where we are supposed to be so great and we give so much money away in foreign aid etc,yet the govement are failing disabled children left right and centre!
Ill get digging tommorow morning for you.
Have a nice evening and try and get some rest.

Thank you Daniel, I am heading off now. Tomorrow is another day

Hi everyone,

Just thought I would update on here. I am currently on hold with Disability Rights (as I type), I am having sleepless nights with all of this housing business. Hope you are all well?

How did you get on with Disability rights?