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Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

The forum was created by parents who have children with special needs and is run by parents so we are all in this together. With us you will realise you are not alone

Parents of disabled children launched in October 2009 and we are growing day by day and are fastly becoming a major support resource for all




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cheapsensorytoys
??? random....can't think why Confused
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#11 02-20-2010, 02:23 PM
Labour Aides are known to report anything that may be seen to put pressure on Gordon Brown........
So i think some labour supports have obviously reported this.

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From sensory toys to a brand new range of special needs bibs:
www.cheapdisabilityaids.co.uk
Our Irish members can also use our new website for Ireland which is

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#12 02-20-2010, 02:29 PM
(02-20-2010 02:29 PM)Daniel Wrote:  Labour Aides are known to report anything that may be seen to put pressure on Gordon Brown........
So i think some labour supports have obviously reported this.

Cheeky buggers! I might just have a few reports to file on their pages later then!9
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#13 02-20-2010, 02:39 PM
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(02-20-2010 02:39 PM)fatherjack Wrote:  Cheeky buggers! I might just have a few reports to file on their pages later then!9

295017
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#14 02-20-2010, 03:00 PM
This may be a little long but I wanted to put across how important this petition can be to many families.

When my son was little we had an awful lot of medical equipment to haul around.
He had a trachy so there was the suction machine to manage.
He was oxygen dependant so there was oxygen cylinders.
He had an ileostomy so there was all the stuff for that.
On top of all that there were the usual baby stuff like nappies, bottles, spare clothes, etc.
I don't drive and my husband had just undergone a major operation on his back which left him with permanent mobility problems.
Getting out of the house was a nightmare!

I tried buses a few times.
Because of all the medical equipment his pram had to be the larger kind to be strong enough not to break. It was difficult to manoever.
I couldn't lift it onto a normal bus and the kind where the floor lowered were few and far between. Even if I got onto the bus there was rarely enough space.
I was reduced to tears once by a driver who insisted I take down the pram as I was taking up too much room.
Can you imagine trying to lift out the baby on a moving bus, trying not to dislodge the oxygen tubing which was attached to the trachy, or dislodge the trachy! Then lift out all this heavy equipment, stand and hold the lot of it and the baby whilst folding the pram?
It couldn't be done so I was put off the bus in the middle of nowhere in the rain.

Hospital appointments were often several a week. To get there required the use of hospital transport. Hospital transport means you need to be ready for 8am even if your appointment isn't till 12. Then you may need to wait around for hours for the transport to take you home.

And shopping was truely a nightmare!

What a difference mobility money would have made to us. To have been able to afford to take a taxi when needed would have had such a positive impact on our lives.
(This post was last modified: 02-20-2010 03:05 PM by Dawn.)

Dodgy
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#15 02-20-2010, 03:04 PM
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