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becncharlie · #1 08-18-2010, 08:40 PM

charlies had another seizure so this is his 2nd 1 in as many months and trying to get help with this is very difficult i feel as if im banging my head on a brick wall hes havin countless probs at the min n still hes being left??? hes havin 1 third of a wet nappy in 24 hours not pooing still losing alot of weight in my opinion and is at the point were his bones are starting to poke out again but hes having plenty of milk/calories so really dnt know y??
is a lil help really too much to ask??

my 2 boys so much

***Lucy*** · #2 08-18-2010, 08:44 PM

of course its not hunni!!!! you and charlie totally deserve it!!! i would get on the phone first thing to dietician and the paed and tell them how scared you are and frustrated!!! they have a duty of care Sad

sending huge hugsss xxxxxxxxxx

Munchkin · #3 08-19-2010, 09:35 AM

Hi

I'm so sorry to hear Charlie had another seizure, how frightening for you.

Totally agree with Lucy, just get on the phone and keep hounding anyone who will listen. When we were having a problem with my sons physio my husband went down to the hospital and stood outside her door until she addressed the problem.

Hugs to you and let us know how you get on.

Louise