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Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

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Completely exhausted, any ideas?
cheapsensorytoys
Ahh my boy loves holidays, but only with us, or his grandparents on his dad's side - he can't stay with anyone else... he's very lucky because this time he's going with granny and grampa (while me and my husband go camping!), and they are very structured and routined, and strict in the best kind of way...

He's strange because sometimes he loves new things! Although it's almost like he feels he has to say 'I like to eat new kinds of food.' a few times before he goes for it Smile

He's been singing happy birthday to me today, on loop, again.... all day.... lol
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#6 07-29-2010, 07:55 PM
matt wont try new food at home when we make it for him yet he has things at college or respite that surprise us yet he did nick my saus sandwich that i put brown sauce on cause he doesnt like the smell and scoffed it. he has to smell all his food and if he approves he will photograph it before he eats it lol its good that our Children can make us laugh just when we need it Big Grin

There comes a point in your life when you realize:Who matters,Who never did,Who won't anymore...And who always will..
So, don't worry about people from your past,there's a reason why they didn't make it to your future.
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#7 07-29-2010, 07:58 PM
cheapsensorytoys
(07-29-2010 01:47 PM)Blueberry Wrote:  Hi, I'm brand new.. I joined today because I reached a point of desperation yesterday and I've been googling for help!

I've been struggling with my 6 year old son, we're pretty sure he has high functioning autism... I've known ever since he was about three he was an unusual child.. and when he started school it became very obvious how different he was..

I have a massive list of symptoms and a diary I keep regarding unusual happenings... they all point to autism as far as I can see... but I'm not an expert...

Since he's been about 4 I have been asking the school to have him looked over - we got to see NEYS while he was in nursery, they said it was my post natal depression clouding my vision (with my daughter, she was newborn) and that he was just 'grumpy' I felt belittled and embarrassed and left off asking for help for about a year...

do you have a local homestart charity near you that can come and give you help and support great charity, you get refered by your Health visitor there to help mentally and physically all volenteers try them and see if you can get someone to help out 1 a wk just so you can rest and recharge your batteries hope you find something that works good luck

He's got more and more difficult to understand and live with at home, but at school he's not the same! He's shy and quiet and when things get too much for him he falls asleep! At home when things get too much he starts attacking everybody...

We've been repeatedly stalled by the ed psych for the school, who has come up with a multitude of excuses to delay us getting anywhere, the one at the moment is that he needs thick glasses, and that may have caused all his social difficulties (!?!)...so we're in limbo... his teacher finally said to me at the end of the year (AAAH!) that she thinks he definitely has SEN.

He's becoming very violent at times at home; yesterday my parents came (they set him off I don't know why) and he literally beat me up, beat my mum up and tried to strangle his two year old sister.. I have bruises... if he had been a teenager I would have had to call the police... it's left me really shocked and upset...

I've asked for a referral to the community paediatrician (we're on a big waiting list) and he's going to see an occupational therapist, but no one has offered us any practical help... parent partnership sent us a load of leaflets and then wrote to say they were closing his case as it was well managed by school...

I don't know what I'm supposed to do when he attacks people who visit my house!!! He winds the girls up and home life is complete hell now it's the holidays...

I just don't know what to do Huh would it be worth calling social services?! I really don't know.. sorry for the huge message..

hi sorry but other reply was wrong. i was just writting to say have you got homestart in your area this is a great chariety that will give you support mentally and physically for a few hrs a wk so that you can recharge yourself can get refered or self refer by Health visitor.
hope this is an idea to go down the best of luck and hope you get the help and rest you really need zoexxx
(This post was last modified: 07-30-2010 07:50 PM by zoem474.)

i have 4 special children emily 9 thomas 3 and id twins who have gdd who are all the greatest
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#8 07-30-2010, 07:44 PM
Homestart are a great charity offering support both in the home and outside the home and also run numerous disability groups for parents.
We go to one and its great Smile
Members should check if they have a local group as its been great for us to have adult conversation and they even have a playworker at our group so the adults can chat and the playworker plays with the Children Smile

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From sensory toys to a brand new range of special needs bibs:
www.cheapdisabilityaids.co.uk
Our Irish members can also use our new website for Ireland which is

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#9 07-31-2010, 07:16 PM
Hi it took me from year 2 until year 6 to get someone to see Liam, they diagnoised him just as he was leaving junior school to go into high school. The school was brilliant and were trying everything to get him seen by someone, they even got him referred to the nspcc as they said they needed someone big behind them to listen(but they said he was over there heads and they couldnt do anything to help, even told me not to tell anyone they had been involved because if cahms found out they wouldn't see him) . In the end it was the paediatrician (that i self referred him too) that managed to get cahms to see him. I have just tried to refer my daughter myself to the paediatrician like i did with Liam as she is exactly the same as her brother but apparently the system has now changed and it has to go before a panel before they can accept her.
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#10 08-01-2010, 07:27 PM
cheapsensorytoys
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