1 user browsing this thread: (0 members, and 1 guest). 1 Guest(s)
|
update on the cdc we went to
|
|
|||
|
well, they do think its autism as she has something in every catergory (even tho they didn't say that but they told me about every catergory and we talked about the behaviours she had that go into each), there doing an autism test next week, they said the way she knows her numbers and colours is classed as obcessive as that what she chooses to learn rather than just learning to communicate normally, she knows alot more in colours and numbers than they would expect for a child her age (?) , her foot pointing inwards isnt a problem the phisio said she is super felxable and it could be because she sits in a W shape (and she sits like that just because she can), so guess i will have to wait till next week then the next step is the school meetings, i was hoping they were going to tell me im waisting there time and theres nothing wrong with her, i did have a little break down afterwards, i realise that was just me being silly but felt alot better for it, i really dont think she is at..i guess the worst end of it..maybe not the best or right way to put it, or maybe again im just hopeing thats the case, as i see the extreme form is where the children are lineing up things in certain orders and colours, and not wanting to interact at all, again i dont know much or claim to know anything about autism, its very difficult tho having a child i cant really communicate with, most of the time it seems normal, till i go see my friends where there 2 1/2-3 year olds are having normal adult conversation with there parents, then i guess it hits home a little more, on the up side her school as it is linked with some sort of charity people with children who have difficulties do travel to use the school which is lucky for me as its my local school, and she should be able to stay at the school, i will update with cdc session 2 next week lol |
|||
|
#1
04-25-2010, 05:54 PM
|
|||
|
|||
|
Oh thats good that they've all come to an agreement! I know what you mean though, its bittersweet as you finally know you're getting somewhere, but at the same time you're having to come to terms with the fact that you have to have the meeting and the diagnosis in the first place. The only advice i can give is, its ok to be sad when you're sad, and its also ok to be happy, relieved, vindicated, and anything else you may be feeling! I have up and down days still, my GP actually got it right when he said its almost like you're grieving for the child you thought you had, whilst getting to know the child you're going to have. I was a bit put out when he said it at first, but looking back i can see what he meant! Luca also knew his numbers and colours from an early age, and its one of the only things he's never lost. everything else he used to do has gradually stopped. ie knowing his name, age, what noises animals make, etc. He's gradually starting to speak a bit more now (he's almost 5) and his speech therapist is hopeful that he'll be relatively high functioning as apparently having any kind of speech before the age of 7 is a good sign. Thats also good news on the school front, if she's already in a really good school it will make things a lot easier! Good luck with your next meeting x
|
|||
|
#2
04-25-2010, 07:45 PM
|
|||
|
|||
|
congratulations seems a strange word to use but getting a diagnosis is a big step
a good thing about obsessions is a good school with use that to their advantage to help her with learning (with matt it was counting buses or knowing the colours of buses ect hehe) dont listen too much to what they say regarding she wont do this she wont do that as every child is different, they say if they dont talk by 7/8 they will never talk but thats wrong, they just learn their own way and when they are ready and are sooooo stubborn that they will refuse to learn unless they want to its like having a teenager in a toddler body there are so many different levels from mild to severe with high functioning anywhere along the spectrum (can get severe autism but still be high functioning lol)corinne There comes a point in your life when you realize:Who matters,Who never did,Who won't anymore...And who always will.. So, don't worry about people from your past,there's a reason why they didn't make it to your future. |
|||
|
#3
04-25-2010, 09:50 PM
|
|||
|
|||
|
it is a big step, it weird as now i really know there is a problem (even though i did know really) i feel like i can understand her more, and less pressure in a way, i guess its more common in boys as the woman said to me that its nice to play with a girl for a change, she is very stubborn its either her way or no way
|
|||
|
#4
04-25-2010, 11:18 PM
|
|||
|
|||
|
i think it is bitter sweet....you strive for someone to acknowledge you and listen to your concerns but i think we all want it to be something fixable. It did kind of feel like grieving for euan when he was diagnosed with his condition because as a parent you have secret images of grankids....university etc etc. i think one thing it has taught me is that i'm just greatfull if my children are happy...whatever they turn out to be
xx |
|||
|
#5
04-26-2010, 05:43 AM
|
|||
|
« Next Oldest | Next Newest »
|


Join the forum
Useful resources
Search







a good thing about obsessions is a good school with use that to their advantage to help her with learning (with matt it was counting buses or knowing the colours of buses ect hehe) dont listen too much to what they say regarding she wont do this she wont do that as every child is different, they say if they dont talk by 7/8 they will never talk but thats wrong, they just learn their own way and when they are ready and are sooooo stubborn that they will refuse to learn unless they want to
its like having a teenager in a toddler body
there are so many different levels from mild to severe with high functioning anywhere along the spectrum (can get severe autism but still be high functioning lol)