great news! hope she recovers soon.xx

We're home.
Thanks Carrie for doing an update. Managed to get hospital internet but it had some sort of block on a lot of sites. (this been one)

Sophie is doing really well after surgery. Gastrostomy looking good. Coping ok with it just a bit scared of cleaing roound it. Still a lot of dried blood on it but dont want to hurt her by pressing too hard.

Actually using it isnt any different than using the NG.

Sophie is learning to get around she just looks very funny. Am sure she will get use to it in time and as the soreness improves.

Glad its all over (just hoping they dont decide that they should of done the fundop).

Thanks for all your thoughs and wishes.
Love Sara and NG free Sophie xxxx

(08-29-2010 06:58 PM)Sara Sophie's Mummy Wrote:  We're home.
Thanks Carrie for doing an update. Managed to get hospital internet but it had some sort of block on a lot of sites. (this been one)

Sophie is doing really well after surgery. Gastrostomy looking good. Coping ok with it just a bit scared of cleaing roound it. Still a lot of dried blood on it but dont want to hurt her by pressing too hard.

Actually using it isnt any different than using the NG.

Sophie is learning to get around she just looks very funny. Am sure she will get use to it in time and as the soreness improves.

Glad its all over (just hoping they dont decide that they should of done the fundop).

Thanks for all your thoughs and wishes.
Love Sara and NG free Sophie xxxx

Glad to hear your back
Maybe in the morning you could try a bath for her but with no soap or bubbles
What surgeon did the procedure?
Have childrens got the internet? Where abouts?
Ill give them a kick over there filters
Take it easy tonight and enjoy some peace away from the beeping noises and hospital noises and sats montioring all night and the obs .

(08-29-2010 07:20 PM)Daniel Wrote:  Glad to hear your back
Maybe in the morning you could try a bath for her but with no soap or bubbles
What surgeon did the procedure?
Have childrens got the internet? Where abouts?
Ill give them a kick over there filters
Take it easy tonight and enjoy some peace away from the beeping noises and hospital noises and sats montioring all night and the obs .

Thanks Daniel.
Been told I cant bath her for a week and got to just clean round it 12-6 and 6-12 once a day with the bits they given me.
Surgeon was Mr Parik. Registar was lovely, large ginger haired man called Andrew.
One of the other moms had a parents room and she was even a code to access the internet. Nice lady gave it to me too.
As for beeping machines and sats monitors well am sure I still got the nosies beeping in my head now. Along with the babies crying.
Dont know how parents can leave tiny babies on their owns all the time (very judgemental I know but I couldnt do it)

(08-29-2010 07:33 PM)Sara Sophie's Mummy Wrote:  

(08-29-2010 07:20 PM)Daniel Wrote:  Glad to hear your back
Maybe in the morning you could try a bath for her but with no soap or bubbles
What surgeon did the procedure?
Have childrens got the internet? Where abouts?
Ill give them a kick over there filters
Take it easy tonight and enjoy some peace away from the beeping noises and hospital noises and sats montioring all night and the obs .

Thanks Daniel.
Been told I cant bath her for a week and got to just clean round it 12-6 and 6-12 once a day with the bits they given me.
Surgeon was Mr Parik. Registar was lovely, large ginger haired man called Andrew.
One of the other moms had a parents room and she was even a code to access the internet. Nice lady gave it to me too.
As for beeping machines and sats monitors well am sure I still got the nosies beeping in my head now. Along with the babies crying.
Dont know how parents can leave tiny babies on their owns all the time (very judgemental I know but I couldnt do it)

I think i have met the registrar at Euans intial appointment for the button.
He reminded me of an Eton boy
I personally couldnt leave my children alone overnight but then there reasons some do such as being a single mum with no family to help or possibly having another disabled child and in some cases ive seen families with children who have been in hospital all there life and they have had to go back to work etc.
It would be tough.

We never had the bathing advice we were just told to avoid any bubbles and irritants as plain water was fine apparently