My son Matthew has had many problems since he was born. We knew it would be a struggle as he stops breathing constantly and needs to be rescucitated. We had to visit his consultant at great ormond street recently and they said they would never cure him only manage his problems. I feel so devastated i know it sounds silly but i always thought he would get better not spiral down hill. He has a good life don't get me wrong it's just limited with all his problems. I try so hard to be optimistic but it doesn't always work out that way. It doesn't help that some people think that because he looks ok he isn't a seriously ill child. Hate having to explain to people that he's sick he just doesn't look sick. He's now constantly tube fed. xx

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Mum to Abigail 8 & Matthew 4. Children with disabilities are like butterflies with a broken wing. They are just as beautiful as all others, but they need help to spread their wings.

hi i know how you feel my daughter looks ok too but is sick and stops breathing the same and tube fed we dont have a full dx yet she is 4, some people are rude and we should not have to explain our self s to any one!! hugs

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hi i know how you feel my daughter looks ok too but is sick and stops breathing the same and tube fed we dont have a full dx yet she is 4, some people are rude and we should not have to explain our self s to any one!! hugs
(This post was last modified: 07-27-2011 03:44 PM by jacknchloesmum.)