Hi, we are in desperate need of any help any of you can give regarding our sons behaviour. He has fragile x and possible autism, his behaviour has gradually being getting worse since he was 2 he's now 10yrs so thats 8yrs we've being asking dr's, pead anybody who will listen or not as the case has been and have got very little help, in fact the only help we've had was from the CAHMS team who told us to ignore the violence, swearing rude gestures which we tried but ended up moving from room to room with an angry 10yr thinking he was in charge and trying to hit us more! We are finding that the swearing and rude gestures to anybody in the street shop anywhere the most hurtful and embarassing as people think it's the way we've bought him up, I know this isn't the case as we have 3 other children who don't do this and we do this to them. Does anyone know anyone else we could try to get this sorted for his own sake for than anything else as he's been suspended from school this week because of this behaviour I don't want him to be expelled as he's done so well at his school. (sorry it's long) thanks

im so sorry hun, huge hugs, i dont have any advice im affraid, but im sure someone will

I have a child with behavioural disabilites although not to the extent you have. I do find that ignoring her undesirable behaviour is the only way to deal with her; this includes no eye contact no telling off --absolutely nothing. Have you tried contacting camhs again saying you need more help? Is there a Fragile X support group that may help you. Did you know that under the disability discrimination act a child cannot be excluded from school on behavioural grounds if it is part of their condition/syndrome?

Hello, We too have some behaviour issues wuth our daughter Emily. It's true that ignoring the undesired behaviour does work but not for all behaviours and it will take around 4-6 weeks before you notice any effect. Contact Camhs again and ask for a functional assessment. A phsychologist needs to work out what the function of each behaviuor is. Have a look at a website for the challenging behaviour foundation. They are a charity who give literature and advice to families of children with complex needs and behavioural issues. They've helped us loads and we are managing much better. If Camhs fob you off then persist, get your GP or your sons specialist to do a priority referral. I empathise with you as I was at the end of my tether and cried my eyes out on the phone to Camhs, it worked though!
I wish you lots of luck, you will need patience, wine and chocolate.
I hope I've helped a bit x

Thanks you have been a help, I'll ask CAHMS for that assesment although it usually takes us 2 wks to get hold of them there so busy and I'll try that website too not forgetting the wine and chocolate. x

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Thanks for all the replies, Hazel 52 my son goes into a meltdown where he throws things around the classroom shouting and swearing at people, and because he threw a book which he didn't aim at anybody but hit another child to why he got suspended, are they allowed to exclude him because of this behaviour?, I really don't know why he's doing this at school as he loves it and has never done this at school until 6mths ago so can't understand what's gone wrong. thanks x
(This post was last modified: 06-24-2010 06:00 PM by nicky.)