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Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

The forum was created by parents who have children with special needs and is run by parents so we are all in this together. With us you will realise you are not alone

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another week in hospital for us!
cheapsensorytoys
Poor jacob was admitted to hospital last thursday with a fever that wouldnt go down despite oral antibiotics, we suspected he had a gastrostomy site infection but we were wrong, on monday he was diagnosed with Acute herpetic gingivostomatitis and yesterday Acute herpetic pharyngotonsillitis. his mouth, tongue and throat are severly blistered and ulcerated and a week later his temp is still above 39. he cant eat or drink and is now terrified of food so we're back to 20 hour continuous pump feeds which is a real pain in the neck!
we came home this morning as there wasnt much more they could do in hospital which we cant do at home, but i'm gutted as he was due to have his MRI scan this afternoon in preparation for his genetics appointent tomorrow :-(. typical he should get so poorly now after being well for almost a year lol.
so we're faced with combatting Oral Aversion for the 3rd time in 3 years, fingers crossed we can beat it again! xx
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#1 11-10-2010, 12:00 PM
cheapsensorytoys
Oh bless him! I hope he picks up soon.Lots of love to you all. xx
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#2 11-10-2010, 02:31 PM
oh no! hope he recovers soon.xxx
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#3 11-10-2010, 06:28 PM
Hope he's on the mend soon xx
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#4 11-10-2010, 07:24 PM
cheapsensorytoys
hope he gets better soon xxx

I have 5 lovely children and even though it's stressfull at time's I love having a big family
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#5 11-10-2010, 10:42 PM
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