An intresting discussion to be had here i think and hopefully open up some good debate and give us some good view points.
Since your childs diagnosis how has it affected your life?
Some ideas possibly include:

• Has your relationship suffered or are you and your partner no longer together because of the diagnosis?
• Has your relationship improved since the diagnosis and has it made you stronger?
• Has it affected your previous freindships with freinds?
• Has it affected your social life?
• Are you a stronger or weaker person now?
• Has it changed your personality?
• How has the diagnosis changed your life path?
  

The above are just some possible ideas on how things maybe now.
What would you say has been affected?
Look forward to your thoughts and views....

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Our Irish members can also use our new website for Ireland which is

When we got the diagnosis of finding out that I have a 9q deletion has made me feel weak because they dont offer counselling on how you feel, but i am me at the end of the day.
our relationship as a married couple can be strained on time with the daily stresses of looking after Children with complex needs.

when chatting to other people you find your not alone and with that you can build on it.
there must be something there between us as a couple if we are still together after all we have been through.

If there is communication between 2 people i think thats enough to get you on a even keel, and also i think we have to tell each other how we feel.

whats affected in our relationship is the sex life and thats one word i hate right now even though we are exhausted. we have to make time for it, i used to love my sex life haha.

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as a whole over the years i become a stronger person i think

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and another thing i havent got much friends.

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following the diagnosis we are both on anti depressants and both have our ups and downs. but we love each other.
(This post was last modified: 01-03-2010 09:51 PM by Karen.)

(01-03-2010 09:36 PM)Karen Wrote:  and another thing i havent got much friends

What are they??

you know where your friends are when you look for support just to get some time together to out daniel. where is it you and lucy are from maybe we can get a meeting organised so we all can meet up.

Thats something we can maybe do long term once the site is at a certain level........
Were down in Brum but we do occasionaly visit glasgow as Lucys dad lives there.