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had meeting and is feeling numb and upset
cheapsensorytoys
hello i had a meeting with my sons teachers and profeccionals to discuss what will happen with my son and about gettin a statement for my son and just how he is getting on. it was very daunting listening to what he is struggling with. they have said my son likes routine and strcture. they said he has learnt his phonic which is a big thing for him but school have to take it with caution as he can learn things and then forget them. there was a lot of things to take in. it then went to my sons special needs nursery nurse and she has said that she is concened about his sholder stability and how when he gets on all 4 she has to lift him up and posison him which i knew he has problems there in some areas but not the ones she said and she said his fingers are weak and his grip is week and his posture is very poor. it then went on to what will happen in september and because the school he is in now is gettin knocked down and that most of the teachers wont be there he knows they dont think he will cope they sounded concernd on that matter as the new head is changing all the days routine and putting it on its head and that they think he wont cope and be very unhappy they said it would tip him over the edge as it has took them a whole year for him to get where he is now. i am numb inside as i kno he will be gettin a diagnosis for dcd in few weeks and just the fact he wont cope but i am going to look round schools before i decide where to send him as i want the best for him but it is like i am greaving for a child that i hoped would catch up and manage in school and now its down on paper and that just feel very numb dont know if anyone else has felt like this. (Sorry for going on) so i am just trying to take it all in
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#1 01-14-2011, 09:00 PM
cheapsensorytoys
Hi Windsor , i'm sure you are feeling very numb and upset . I understand how your feeling , think we all do when we dont think we'll hear the worst . My son is in special needs nursery and when i was up in November they told me why son may never talk or even use makaton sign . But i also seen the good that the nursery is doing with him . They kept saying to me about getting him to crawl and he had just learnt himself which they hadnt seen , so try think of something your son does at home that the school doesnt see . It is hard and once you've taking it all in you'll hopefully be feeling better about things . We all have our good and bad days and no matter what our sweet loving children do or dont do , we still wouldnt change them for the world , because we love them for the who they are , thinking about you xox

Single mum to a 14year old daughter and a son who is 3years old who has severe learning disability , hypotonia , hypermobility , visual impaired and sensory issues , he has showed me the meaning of life Heart and 3rd baby due 2nd of January 2012
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#2 01-14-2011, 09:27 PM
sounds like your havin a tough time, it takes time to come to terms with everything. meetings are very upsetting because they tend to bring all your underlying worrys out into the open and then u have to find a way of dealing with them. do you have anyone to go to meetings with you as this would be helpfull, then you would have somone to talk with afterwards maybe take sum of the pressure of you.as you progress on this journey you will come to realise that the meetings tend to focus on the bad points, this is good in the long run as it will get the help you need. you need to make the right choices for you and your child but also remember that although you may have problems this is your child and you need to make the best of the good times as they soon grow up. good luck
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#3 01-14-2011, 09:28 PM
Hi Heart
Was anyone at the meeting with you? You need the support of someone to talk all this through with and go school/nursery-hunting with. You never know, you will probably come across the most amazing school while you are looking around.
I know how you feel, we all do, the grieving and numbness. It will stop you in your tracks sometimes but with the right advice and support it neednt be that way...find out who can help you and make some connections. You are the key to making good things happen for your son...and you CAN! No pressure! Big Grin
Big hugs xxxxxxxxx
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#4 01-14-2011, 09:38 PM
cheapsensorytoys
gosh you need a hug, try and be strong, my son has dyspraxic tendencies,hypermobility and flat feet amongst other things. he trips and falls frequently and quite often complains of his legs hurting. does your child have a statement ? or funding ?. It hurts when someone tells you what is wrong with your child but try and think of the positive things, All children are special but yours is a bit more special, Have a cry, then do what i do and keep fighting for your child. xxx
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#5 01-14-2011, 09:54 PM
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