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Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

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Argh! Bed time just couldnt come quick enough!
cheapsensorytoys
Eeeeeeeeeeeeekkkkkkkkkkkkkkkk!

Im realy at the end of my teather with sam, hes behaviour has been getting worse over the past few months, and were he never realy shown hes true colours (behaviour wise) to school other than smacking hes 1-2-1 and telling her to p!ss off, they actualy commented a few weeks ago saying.. 'I think Samuel is now coming out of hes shell showing us hes true colours' ...finealy!

However, these past few weeks have been draggin me down.. & everyone has been commenting on how they feel hes getting worse. (Even my sister who is very laid back commented and said hes to much now), but i honestly dont know were to turn?

We have had no contact from our paediatrion in months, and she was suppose to be writing to school to see if they felt he needed a test doing for autism and dispraxia. The school have replied and again we have heard nothing so we dont even know were we stand?

Just getting extreamly hard tho, as he tires my daughter out so i have to take her to my mums for few hours of a evening so she can get a bit of rest from him, not only that we cant realy take him to other peoples houses as he gets on there nerves and with him having learning difficulties he doesnt understand plus hes extreamly loud!!

I know its not hes fault as such but know you guys will understand were im coming from..

As of tonight, bed time realy couldnt come quick enough.. plus DP on night duty with him tonight which is all good.. lol

Rant over Huh
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#1 08-05-2010, 05:44 PM
cheapsensorytoys
Hello

Do you have a key worker from the social services, we've been told to look into this as I am finding it hard with my son, as it is taking its toll on my health as well. I am sure the physio doesnt believe me when i say i cant put him in his standing frame or do this with him. It makes me so mad. Angry

I have been told that the key worker will help you out with lots of things instead of going through your OT or doing things on your own. Get in touch with your local council and ask them to put you in the right direction.

Good luck and keep your chin up, ill be thinking of you.

xxx
Angel
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#2 08-05-2010, 08:31 PM
(08-05-2010 05:44 PM)Lea89x Wrote:  Eeeeeeeeeeeeekkkkkkkkkkkkkkkk!

Im realy at the end of my teather with sam, hes behaviour has been getting worse over the past few months, and were he never realy shown hes true colours (behaviour wise) to school other than smacking hes 1-2-1 and telling her to p!ss off, they actualy commented a few weeks ago saying.. 'I think Samuel is now coming out of hes shell showing us hes true colours' ...finealy!

However, these past few weeks have been draggin me down.. & everyone has been commenting on how they feel hes getting worse. (Even my sister who is very laid back commented and said hes to much now), but i honestly dont know were to turn?

We have had no contact from our paediatrion in months, and she was suppose to be writing to school to see if they felt he needed a test doing for autism and dispraxia. The school have replied and again we have heard nothing so we dont even know were we stand?

Just getting extreamly hard tho, as he tires my daughter out so i have to take her to my mums for few hours of a evening so she can get a bit of rest from him, not only that we cant realy take him to other peoples houses as he gets on there nerves and with him having learning difficulties he doesnt understand plus hes extreamly loud!!

I know its not hes fault as such but know you guys will understand were im coming from..

As of tonight, bed time realy couldnt come quick enough.. plus DP on night duty with him tonight which is all good.. lol

Rant over Huh
Me and Lucy are sharing your stress Blush
Euan has been an emotional mess this holiday with meltdowns all day and his stammer is so much worse in moods like this.
He really is getting violent with us to a very high degree now Dodgy
Cant offer much advice as if i had it i would follow it Smile
But just wanted to send my thoughts and wish you some luck Smile
As i think over the next few weeks we are all going to need it.
If at all possible try and get a bit of you time on the nights when he does go to bed,pick up a magazine and jump in the bath.
And i know it sounds daft but smile to yourself a few times a day Smile

We are here if you need us Smile

[Image: smalldis2.png]
From sensory toys to a brand new range of special needs bibs:
www.cheapdisabilityaids.co.uk
Our Irish members can also use our new website for Ireland which is

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#3 08-05-2010, 09:08 PM
Tbh huni, i havnt got No.
I have been fighting this 5nearly 6yr battle on my own (well with my family obviusly)
And if im honest i dont realy want to go to SS for help, and i know they probs the best bet but want to try without them being involved as they was involved years ago (for other reasons regarding hes biological mum)..
Not only that, with us being young parents i feel people look down on us, etc.. Plus the other month i went to my GP for help regarding issues when im out with DSS and he was trying to tarr me of saying he doesnt need this that and the other, yet he doesnt know what hes like as hes NEVER seen him regarding hes disabilitys. So if my own GP can think of us this way im sure others do to!
Suppose its something i shall just grin and bare!

Thanks for ur reply tho Smile
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#4 08-05-2010, 09:09 PM
cheapsensorytoys
(08-05-2010 09:09 PM)Lea89x Wrote:  Tbh huni, i havnt got No.
I have been fighting this 5nearly 6yr battle on my own (well with my family obviusly)
And if im honest i dont realy want to go to SS for help, and i know they probs the best bet but want to try without them being involved as they was involved years ago (for other reasons regarding hes biological mum)..
Not only that, with us being young parents i feel people look down on us, etc.. Plus the other month i went to my GP for help regarding issues when im out with DSS and he was trying to tarr me of saying he doesnt need this that and the other, yet he doesnt know what hes like as hes NEVER seen him regarding hes disabilitys. So if my own GP can think of us this way im sure others do to!
Suppose its something i shall just grin and bare!

Thanks for ur reply tho Smile
Social services can be a force for good too Blush
They could maybe make an assesment for direct payments which could give you time with your partner or with your other little one Smile
I really urge you to consider it.
It took me over a year but in the end i felt i had to in order to have a bit of sanity Huh

[Image: smalldis2.png]
From sensory toys to a brand new range of special needs bibs:
www.cheapdisabilityaids.co.uk
Our Irish members can also use our new website for Ireland which is

Quote this message in a reply
#5 08-05-2010, 09:16 PM
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