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feeding pumps
cheapsensorytoys
we having problems with our sons feeding pumps the poblems are there giving the full feed and sometimes cut out we have asked for a different one and to our belave we carnt as we dont live in right area SadSad so we have to buy our own pump and supplys this is so shocking the flow rate only goes up 300 when my son grows hes going to need a higher flow rate then what ? i dont really think the nurses know what to do niether so do anyone got any advice im willing to buy the pumps for my boys but this shouldnt have to happen im livid Angry
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#1 07-06-2010, 05:53 PM
cheapsensorytoys
You will find that as you boy grows up they will change the feed. My daughter is 12 and has an infinuty pump from nutricia. She has a litre of milk in 24 hrs giving her 1500 cals. She has recently changed from paediasure plus to nutrini energy multi fibre as she is over 30 kgs. I totally agree you should not have to but supplies; have you talked to your dietician too?
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#2 07-06-2010, 05:59 PM
whos your nurse? and are you on same pump as us clear star? if so ours is great and we get through abbott
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#3 07-06-2010, 07:34 PM
(07-06-2010 07:34 PM)jacknchloesmum Wrote:  whos your nurse? and are you on same pump as us clear star? if so ours is great and we get through abbott

ours are from abbout too hes having 4 bouls feeds per day running at 300 mls a hr so hes having 300 ml hes on pedisure plus which had caused him dierrera for the past year i have spoken with there ditenitan and she just finally changing his milk from a company called fresiuns there brill we had them before we moved to barnslry and we had never had any problems and could ajust his milk to what we wanted
(07-06-2010 08:33 PM)mummy to 3 Wrote:  
(07-06-2010 07:34 PM)jacknchloesmum Wrote:  whos your nurse? and are you on same pump as us clear star? if so ours is great and we get through abbott

ours are from abbout too hes having 4 bouls feeds per day running at 300 mls a hr so hes having 300 ml hes on pedisure plus which had caused him dierrera for the past year i have spoken with there ditenitan and she just finally changing his milk from a company called fresiuns there brill we had them before we moved to barnslry and we had never had any problems and could ajust his milk to what we wanted

our nurse is called jannine
(This post was last modified: 07-06-2010 08:33 PM by mummy to 3.)
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#4 07-06-2010, 08:33 PM
cheapsensorytoys
Euan is also on the Infintity pump which is much quieter than the previous pump and slightly more insentitive Blush
Still beeps like mad though when he lies on it.
If you get desperate for the pump and feel the only option is to buy although your really shouldnt have to if your pump is faulty there are a few options on ebay Blush

http://cgi.ebay.co.uk/Kangaroo-324-Enter...27b307323b

The kangaroo pump above is the old style one Euan used to use and was sturdy but did beep but i think that was more Euan lying on it alot.

The general list is also very detailed with some going upto 1200ml an hour
http://shop.ebay.co.uk/i.html?_nkw=infus...m270.l1311

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From sensory toys to a brand new range of special needs bibs:
www.cheapdisabilityaids.co.uk
Our Irish members can also use our new website for Ireland which is

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#5 07-06-2010, 09:02 PM
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