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Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

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siblings of disabled children
cheapsensorytoys
hi all,how do any of your other children cope with having a disabled sibling.my 7 yr old who may have autism gets really upset if anyone says anything about his baby brother and is really angry.we were on the bus yesterday in the buggy space and an elderly lady told us to fold the buggy so she could get her shopping trolley on,my son freaked out, started crying saying "he cant sit up mummy,he can't get out the buggy".the woman just looked at me like dirt and rammed her trolley in anyway.
in contrast however,his sister doesn't treat him any differently and if anyone asks whats wrong with him she tells them his brain is broken!(i don't know where she got that from)
i'm not sure if my eldest is embarrassed by his brother or just doesn't understand why he is different?
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#1 07-07-2010, 06:50 AM
cheapsensorytoys
HANG ON A MINUTE!
She told you to fold down your buggy to get her shopping trolley on!
Lets put this in reverse shall we you get on and say excuse me fold down your shopping trolley so i can get my buggy on!
There is no need for you to fold your buggy down with a real life person in for the sake of a trolley with bread in!
Dont worry about your son here he dont the right thing sticking up for you Confused

Siblings learn to protect there disabled siblings even Emily our eldest goes round school telling all the teachers all the facts about his condition and its funny when they try and assure her she maybe wrong and she says no im not wrong thats true Blush

What happened with the old woman in the end?
Next time somebody does that know in your heart you will struggle quite badly folding that pushchair down so say no.
To many of these pensioners think there king of the buses even though parents especially with disabled/special needs children need that space more.
Dont get me wrong if i saw an person struggling young or old and it was obvious they couldnt stand i would make allowances of some sort but not for some rude old woman's shopping trolley.

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#2 07-07-2010, 07:07 AM
daniel-she wedged her trolley in next to the buggy,i couldn't fold it while the bus was moving as he has a suction machine in the basket underneath.so she managed to ram it in between the chair and the bar! i know he was sticking up for me but people looked at us like i couldn't control my children. i was already standing holding me 3 yr old and the space didn't have seats so we weren't preventing her from sitting down,just her trolley!
i always feel strange saying no to people but thinking in reality if he was bigger he would be in a wheelchair,i guess we do have just as much rights as her.thats made me feel bad now that i tried to turf my son out of his buggy.
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#3 07-07-2010, 07:33 AM
it never ceases to amaze me just how rude and self centred people are. what is also horrible is the fact that this woman has upset you so much beynd just the events on the bus. ultimately what you have got to remember is it's the woman who has a problem not you. the fact she wanted you to fold down a buggy so she could get her shopping basket in, in a buggy area. i hope when the woman went home and thought about her actions she was ashamed of herself.
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#4 07-07-2010, 07:46 AM
cheapsensorytoys
Hello

Our daughter is now 9 years of age but when our son was born with special needs I think his time in and out of hospitals and mummy not being there hurt the most as she was still a baby herself, so she had to adjust to a lot of things being different. She went to the usual sibling groups that was supposed to get her to speak out about her feelings nothing came of that. She has her own friends and her own activities that she has chosen to do on her own, not because of her brother or was chosen for her with brother involved, totally seperate. It has been a long tough struggle for all of us and her included, but now and again she has shown how much she does care for him and tells people how he's achieved this and got that and why sometimes he cant do certain things but he is still her baby brother even though she wanted a sister!! The usual brother and sister messing about got all muddled up with all the other disability stuff and non normal stuff. But it seems to be taking a turn for all the right reasons. She loves school now, she loves clothes shopping with her mum, helps out with chores, not as many temper tantrums as we used to have. It has been a long hard struggle but we are all getting there slowly still a long way to go yet. Just give it time.xxx
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#5 07-11-2010, 08:55 PM
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