cheap sensory toys


Announcement

Families who have children and young people with special needs very often deal with similar life styles. We have all had concerns ranging from education,acess to services,respite and other issues directly related to their childrens needs. Parents of disabled children bring families together for friendship, to share information and to support one another.

The forum was created by parents who have children with special needs and is run by parents so we are all in this together. With us you will realise you are not alone

Parents of disabled children launched in October 2009 and we are growing day by day and are fastly becoming a major support resource for all




1 user browsing this thread: (0 members, and 1 guest). 1 Guest(s)
Post Reply 
 
Thread Rating:
  • 0 Votes - 0 Average
  • 1
  • 2
  • 3
  • 4
  • 5
Hard day
cheapsensorytoys
I am soooo fed up.i had finally managed to sort childcare for my older 2 while scott has his op,then the phone rings its the hospital cancelling scotts surgery and no firm timescale for another date. i just cried solid for an hour. then my sons consultant at our local hospital wants him admitted until it is done and are asking us to consider TPN.to top it all off i just shouted at my daughter for getting under my feet.its not her fault,im a crap mum and ive reached my limit. Sad
Quote this message in a reply
#1 08-19-2010, 06:03 PM
cheapsensorytoys
No Chrissie - you're NOT a crap mum - you're being pushed to your limit and at some point you've got to snap!! I think if any of us were in your position today, we'd have done the same. Did they give a reason for cancelling the surgery?

PS: You won't have reached your limit - you'll have reserves you didn't know existed and the fact the you've posted on here and said you're a crap mum - just means that you really aren't!! If you see what I mean. xx
Quote this message in a reply
#2 08-19-2010, 06:27 PM
Everybody has stress days!
Me and Lucy had a blazing row today Blush
So if she replies here it will be the first time we have spoken apart from the odd uttered words since 3pm Big Grin
Your not a crap mum at all.
I know we all have days when we feel terrible and i know ive had one of those days today.
With Euan being a monster for weeks on end without stopping and being violent and shouty its been a tough few weeks.
He hit Emily so hard today and made her bleed that i found myself saying sorry to Emily as i felt upset that he did it to her.
Its very hard most of the time but as always we get up dust ourselves off and get ready for another days worth.
The joys of being a parent eh?
Try and grab five minutes to yourself tonight and try and do something you enjoy.
Wish i had a magic wand to make things better but as we all know we carry on regardless and that moment of joy they will give us the next day melts us back down into smiling parents for a few minutes at least Big Grin

[Image: smalldis2.png]
From sensory toys to a brand new range of special needs bibs:
www.cheapdisabilityaids.co.uk
Our Irish members can also use our new website for Ireland which is

Quote this message in a reply
#3 08-19-2010, 06:45 PM
I just want to say *HUGS* sounds like that is what you really need
From my experience when you think you can take no more that is when you surprise yourself and realise that actually you can take what ever life throws at you and come out stronger than ever.
Your daughter will understand children understand alot more than we give them credit for (})
Quote this message in a reply
#4 08-19-2010, 07:34 PM
cheapsensorytoys
(((hugs))) sounds like a nightmare :-(. TPN can be amazing in the short term but really should be a last resort, pre surgery may not be as bad as you think, jacob had it as an inpatient for 2 months before his fundo and gastrostomy and without it i can honestly say he'd never have made it to his op date, it caused a whole heap of other problems but the benefits short term outweighed the negatives. I know that isnt the ideal solution and being an inpatient is never what we want especailly with other children.
you are not a crap mum at all, we all snap sometimes, its inevitible with all the added pressure. if admission is the plan make sure that before he is admitted they give you a date as sometimes as an inpatient they will leave and leave things until it has to be done as an emergency (thats been my experience anyway). also its best to be admitted to the hospital the surgery will be performed at as they will have to review him everyday and so cant forget him lol.
big hugs again, i really hope things are sorted soon.
carrie x
Quote this message in a reply
#5 08-22-2010, 07:36 PM
Post Reply 


Possibly Related Threads...
Thread: Author Replies Views: Last Post
  been a hard day babyxxxxx 7 396 06-18-2010 09:23 PM
Last Post: corinne



 


Contact Us | Special needs,disability,disability support groups,disabled children,benefit advice,DLA advice,family fund advice | Return to Top | Return to Content | Lite (Archive) Mode | RSS Syndication