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has a diagnosis helped your child or is it just a label
cheapsensorytoys
just wondered had a diagnosis helped your child or is it just a label

has it made a difference or hasnt it
and doesnt really matter if your has one or not

what your views on getting a diagnosis/ having a diagnosis or
not having one

Heart mum of 2 Heart
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#1 12-24-2010, 12:43 PM
cheapsensorytoys
Hi, I would really like a diagnosis for my boys, without it I blame myself a lot for their problems xx
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#2 12-24-2010, 01:00 PM
hi, i think a diagnosis has helped us because it means I can explain her difficulties without people constantly trying to dismiss them! its also stopped me blaming myself for all her problems. xxx
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#3 12-24-2010, 01:57 PM
Having a diagnosis helped us a little. They still do not know why Matt stops breathing. I don't think of it as labelling as it's nice to know what's wrong. x
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#4 12-24-2010, 08:44 PM
cheapsensorytoys
The doctors are the ones keen to sometimes use the word im not one to just label a child but i must admit i can find that phrase a little frustrating when used in certain contexts.
I also feel it all depends on a childs needs as well.
For example if you have a very poorly child you need a diagnosis to help them get better.
And in cases of things like asd and aspergers and other learning difficulties i can kind of relate to some people saying its about the needs being identified and being met rather than just diagnosing however i really feel that whereever there is a disability or difficulty of any kind a diagnosis does help in many ways and is vital to help the child long term.

It helps the care needs or educational needs of a child if they have a clear diagnosis and also allows parents access to support services that many agencies wont allow access until a formal diagnosis is made.

For example with our eldest daughter we have also had behavioural issues and the feeling shes not quite the average child very clever but very defiant and hyperactive in certain traits and throughout the years we have had many teachers and proffesionals agree something is not quite right with her attitudes and mannerisms and social skills.
We always thought it was ADHD and we battled family members who give us the classic line many can relate to on here
"Oh they have been as good as gold"
Or there never a problem for me.....................
Im sure many parents can relate to these comments or similar and it can make you question as a parent your own parenting skills and wonder if its something you are doing wrong.
Whereas the other day at Emilys cahms appointment we finally had a senior proffesional 100% agree with us and our concerns that we have been shouting about for so long.
The proffesional also out of the blue said that her behaviours and social skills are very common in girls with aspergers and they want to look into this as a reason for her behaviours and support her and work with her to try and help...
ASPERGERS IS SOMETHING WE NEVER EVER THOUGHT OF AT ALL.....
But we read up on it and how it impacts on girls and BANG its our daughter in a book!
But finally we no longer feel isolated or like its somehow our fault and most importantly we now realise its not just Emily doing things to get a reaction or to be mean to others on purpose and it maybe something that she cannot control.
So in a sense the "label" in this case has helped us realise we are not bad parents and also helps us support Emily better and give her that little extra patience and support that sometime when you are led to believe its nothing at all can run short.
So yes i do feel a formal diagnosis helps in many ways across many conditions.

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#5 12-24-2010, 10:33 PM
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